I had a couple of pictures in my phone from earlier this month. Trevor had a test and earned his red “tip” on his white-stripe yellow belt. He will need to earn the black tip before he will be eligible to test for his black-stripe yellow belt. He is making improvements in his coordination and strength. We are proud!
Brendan saw the cardiologist on Wednesday. He had an EKG and an Echo and did such a great job. Not one tear, not even a frown! He was awesome. The doctor ordered Brendan’s heart cath procedure to be scheduled. It will be done sometime in the next few months. They will thread the catheter from his thigh in to his heart to take measurements of the pressure and circulation. They will also thread through his neck into the “Glenn Circuit” to measure the pressure in his pulmonary arteries and his lungs. This is crucial to preparing for his final heart surgery.
If his lungs are ready, the plan is to go forward with the surgery this summer.
Brendan starts the Intensive Feeding Program on Monday. We will be driving to the Children’s Hospital five days a week for 1-3hrs of therapy each day. That goes on for five weeks, then we transition to 2 times a week for three weeks and then once a week for two weeks. It will be a challenge.
Once he is done with Intensive Feeding, he should be starting to attend some preschool classes at the school instead of at home. Our calendar has never been so full. We managed to squeeze in another month of swimming for Trevor too. He loves it so much.
If you don’t hear from me much, I apologize. I haven’t been great at returning messages, I need to get caught up!