I had to scoop Brendan out of bed at 6:30 to check in to the hospital. He was a little nervous.
But he had “Plants vs Zombies” to keep him entertained.
The cath had three entry points, one in each leg and one on his neck. The doctors were looking at the size of all of his major vessels in and out of the heart, as well as the pressures in his heart and lungs, and lung perfusion. Afterward, he had to lie flat on his back for 6hrs. They knew better than to expect a 5yr old to lie still, so he was kept sedated.
He woke up in a pretty good mood, all things considered, and we were discharged that evening. Brendan’s cardiologist called me the next day with the preliminary results. The team was very excited about the progress that Brendan has made; his lungs are so much healthier now. All of the measurements are excellent, and they deemed that he is ready for his Fontan procedure.
We have a meeting scheduled with the surgeon on the 5th of May. After that, they will schedule the surgery. It is expected to have a 2-3 week inpatient stay for recovery.
Sub-post #4: 04/14-16 – 2nd Annual Easter Campout
We are establishing our new Easter tradition. We camped near Stoneman Lake and had the perfect weather! We drove up Friday evening and got camp set up.
Good climbing tree!
Saturday morning, Brendan’s ostrich laid rainbow surprise eggs. (My papier mache was a disaster this year. My eggs literally imploded and could barely be saved)
The boys didn’t notice, they dug right into them. Ostriches lay eggs full of micro nerf guns, mini slinkies, and candy!
Time for some offroading!
Their friend Olivia will not get out of the Jeep until the battery dies. She loves it! So does Trevor!
Jack takes his driving seriously.
Brendan lets Olivia drive.
The boys were both really excited on this trip, they were allowed to shoot a “REAL gun”. It is actually a single-shot, lever-action pellet gun. They felt very grown up.
After a couple of targets had holes, they decided to go exploring
They painted some birdhouses
Time for egg coloring!
Full ham dinner, thanks to Josh and Adrienne. Delicious!
Trevor must have climbed up and jumped out of this tree at least 8000 times.
In the morning, the kids all hunted for eggs and then we all rolled home.
Sub-post #5: 04/22 – Earth Day party at the Dojo
Trevor’s Dojo threw a special party to celebrate Earth Day and invited “Radical Reptile Fun”. The owner, Mike, is a private collector and gives an excellent and informative show about all of his animals. And each child got to pet or hold every animal that he presented. He was well organized! Highly recommended!
Trevor was beyond excited. So was Brendan!
This snake is named Pancake. He is a Woma Python.
Snape, the corn snake
Bubba, the blue-tongued skink
Slithers, the Dumerils Boa
Smalls, a very juvenille Sulcata Tortoise. Give her 30 years, and she may weigh 100 pounds. They often live to be over 100 years old!
Hopal, the Albino Burmese Python is 14ft long and over 100lbs!
Trevor must speak Parseltongue 😀 😀
Brendan says she is so soft!
I loved the show, but now Trevor is begging for a pet snake or a pet tortoise. As much as I love them, we are enjoying pet-free mode for now. He says when he turns 6, he will get a pet snake. Of course, he also says he is getting a motorcycle for his 6th birthday.
Last week, I suffered an acute case of tonsilitis. Now it looks like it is Trevor’s turn. Last night, he got a low fever and his throat is super sore.
Brendan will not be able to get his surgery unless he is fever/antibiotic free for 6 weeks. So if he gets sick now, it will push the possible date out at least that far. So far, he is doing OK. Hopefully Trevor bounces back from this quickly.
After working on this post for a few hours over the span of a few days, I hope I will learn to get the posts done more frequently!
Oh my, what happens when you get so behind?! 450 pictures to go through! We have been riding a roller coaster from the lows of colds, ear infections, and stuffy noses to highs of excellent adventures. We are trying to make the most of our beautiful weather before the summer grilling starts. I narrowed it down to just 93 pics and 2 videos. This should have been at least 10 different posts!
We have a lifetime membership at the Odyssey Aquarium, and we are getting our money’s worth in the first year. We like to spend time there! There are sharks in the bathrooms!
Trevor like the large catfish
Stingrays are his favorite though
Touch pools – he is petting a sea slug
They will spend a lot of time playing with this water table.
There is a new over-sized lite-brite
They have some new Hawaiian stingrays that are really large. This is with the fish the boys call BFG. Like Big Friendly Giant, but instead it is Big Fat Grouper.
With a diver for scale
When you come on Wednesday mornings, it is like having the place all to yourself. On the weekends, you can hardly get through this tunnel because of shoulder to shoulder people!
Trevor is continuing to do his swimming lessons. Swimming is right near the big aquarium on Wednesdays, it works out great.
No hands on this boy, he is really swimming himself! He made it about half the width of the pool.
Then he waits for the rest of his classmates to make it.
Brendan keeps me company in the parent area. He looks forward to swimming some day.
The school treats Trevor to a free popcorn after the lesson. He orders an ICEE too because they always overfill it and it erupts like a volcano.
One Saturday, I was feeling really sick so Bill and the boys took a trip to the mountains to meet some friends.
They took their Jeep.
There is so much funny about this picture
The boys each got to have a ride on a friend’s “real kid quad”
The destroyed a cardboard box with sticks in the wilderness. How much more fun can you have?
All the kids in camp took turns in the Jeep until they wore the battery out
Rocks in water!!! The best!
The next day, we decided to take a drive up South Mountain. It is a nice place to go for views of the city
Trevor continues to go to martial arts, but we have missed a lot due to illness and scheduling issues.
Brendan is almost done with his 12 week intensive feeding program. He has made some good progress and learned some skills, but he has a lot of practicing to do. We were able to eliminate one daily hour-stuck-to-the-feeding-pump from his day. It is a little extra freedom. I am glad to be done with the program for now, it was so much driving and extra time out of the day.
Trevor would spend the time in the lobby waiting for Brendan and making friends.
Now, Brendan is going to SCHOOL!! Three days a week for 2.5 hours, he is in a real classroom with about 14 other kids. So far he really likes it!
This past week, the boys were on Spring Break! We met one of Trevor’s school friends at LegoLand for the day on Wednesday.
The three boys had a blast for hours
Brendan likes all of the new Lego Batman Movie stuff that has been added.
We made a batwing in the free-build area
And raced it on the ramps
He was disappointed that we had to leave it there, so when we got home, we had to do it all again with our own Legos.
It was time for the annual Chandler Ostrich Festival. Brendan had seen an ad for it months ago and was so excited! He love the show “Miles from Tomorrowland”. The boy, Miles, has a pet Robo-Ostrich named Merc that is one of Brendan’s all time favorite characters.
The Ostrich Festival had ostrich racing
Trevor made friends with an emu
The emu was very intrigued by something on Trevor’s shoes and it kept pecking them. The boys found this hilarious.
There was a petting zoo with tiny baby pigs.
A very hungry llama tried to steal the feeding shovels. The boys got to feed goats, llamas, pigs, and even a zebra.
We are waiting for pig races
I have a new phone that actually has a decent camera. The boys want to take selfies. We are silly in our hats, but it was already 90 degrees!!
And they are off! The winning pig gets an Oreo cookie
There was a cool STEM tent at the festival too. It was just nice to be in the shade.
We didn’t get enough ostrich, so we had to make a trip down near Tuscon to the Rooster Cogburn Ostrich Ranch. This was such a fun place, I am not sure why we haven’t been before. It was a massive petting and feeding zoo.
They give you this 5-stage cup of chow and you head out to see all the animals. It starts with miniature donkeys. There was even a baby one.
There is a seed stick for the parakeets.
Then feeding the deer
The “Goat Penthouse” is hilarious. The boys sent the chow up the conveyor belts to dump in to their feeding cups.
This is actually a good way to keep the goats from crowding, pushing, and jumping on kids. It was also quite funny.
On to Brendan’s favorite. This ranch has a tremendous herd of ostriches. I am guessing easily in the hundreds that were visible.
We researched on youtube to find out what sound an ostrich makes. Brendan practiced. At the ostrich festival, he was making ostrich calls and they were actually coming over to him. I think here there were just too many of them!
Each one of these ostriches pecked Brendan right on the head. I think it kind of hurt, but he thought it was so hilarious, he was OK. Next time, we won’t get so close.
Feeding banana chips to bunnies
We saved some chow for the sheep
We each got a cup of nectar to feed the lorikeets.
They told us not to take the the lids off, the birds like to do it.
Birds on heads
Who knew that an ostrich ranch would have stingrays? Trevor’s favorite! These were captive bred and hand-fed from the time they were babies, so they were very friendly about being touched.
Trevor could have stayed all day right here.
We will go back for sure!
Brendan bought this t-shirt and he asks to wear it every day.
LegoLand opened a new exhibit during spring break – all about space! We went on Thursday right when they opened. The line of people queued up at the door was insane and we almost turned around. But we were members and did not have to wait. A very awesome employee helped us go in through the exit and bypass all of the welcome movie and ride line that would hold up the crowds. We went straight for the new room and had it all to ourselves for at least 30 minutes! AWESOME!
There were so many free-build stations full of buckets of space themed Lego bricks.
Many different models to admire
Mini master builders getting to work!
We watched some of the 4D movies.
Thursday night, we were invited to watch Trevor’s karate instructor test for his brown belt. He had a lot of support. After two exhausting hours of demonstration and sparring, he got his belt. Congrats Mr. Nick!
The whole family is mostly healthy. I am not sure with all of the orange trees blooming and grasses changing, we may be dealing with some allergies too. Other than Trevor’s quick ER trip, we have actually done well this winter. Zero admissions for Brendan!!
We want to wish a super happy sweet-16 birthday to Kayla!! (on the 16th) It’s your golden birthday too!
This is a February potpourri, some pictures of a little of everything. We have been battling a never ending train of illnesses and it is getting really old. First Trevor had croup, then Brendan got croup with ear infections and missed a whole week of feeding therapy. Then Trevor ended up at the hospital in the middle of the night with a croup attack again. He missed his belt test and the Valentines party at his dojo. Bill and I had to cancel the date night we had arranged for the first time in easily over a year and a half. He missed a friend’s really cool birthday party. Just when Trevor was feeling better, he got pinkeye and missed his Valentine party at school and a swimming lesson. Then Brendan got a fever again and missed more feeding therapy. Then Bill and I both got the nastiest cold. Then Brendan and Bill got pinkeye.
Now I have pain in both my ears and can’t wait until tomorrow when I can see my doctor. It just doesn’t end!
On to the positiveness..
The boys enjoy their science and the weather was nice so they played outside. I give them a pile of baking soda and vinegar and they can be entertained for hours.
Trevor had worked so hard practicing his combo for his belt test. It went: Ridge Hand Strike, Vertical Punch, Roundhouse Kick, Double Outer Forearm Block! It is a lot for a kid to remember.
Yesterday, the 18th, Trevor was able to go to a belt test make up. There were only 6 kids testing so it was less intimidating. There were far less distractions! He did great!
After breaking a board with his side kick, he earned his upgraded Yellow belt. Yellow with a black strip – his Batman belt. 🙂
Cheese for the camera with his instructor Miss Charlie
This is “Show me your samurai face”.
We were just barely healthy enough to go to the private roller skating event with HopeKids. First time on skates!
Bill was looking forward to it as much as the boys
Brendan was a lot more stable than I expected. He did great!
The roller rink has these “walkers” for kids to use now to learn to skate.
Brendan has to use his headphones because the music was so loud
Trevor did well with the walker thing.
A few more older pics..
Trevor had a crazy hat day at school so I made him a hat that looks just like his favorite puffer fish stuffed animal.
A couple of pictures from last week’s ER trip
Brendan is done with his five day a week feeding therapy and is now in the transition phase where we are going two days a week for the next six weeks. He has made some progress, but it is a very difficult process. Now that he is not so busy, he is going to try something new and exciting. We are going to let him go to school! He will have the same teacher that has come to our house for two years, but he will be in a classroom with other special needs kids. He says he is excited. We just are doing all of the paperwork and medical training necessary. More on that in the next post!