Brendan saw the cardiologist today. We got the Echo out of the way last week, but today they had to do an EKG. Brendan has been pretty stressed out about the flood of doctor visits and tests and hospitals, so I tried to help prep him as much as possible.

We looked at an old picture of him getting an EKG and talked about what we were going to do. We even decided to get out “Jacque the Peacock” and take him along again. He was Brendan’s all time best buddy back in the day..

Brendan was pretty offended by the stickers. He did really well up until the first stick-on touched his skin. I am proud of him because I did not have to pin him down and he sat still for a good reading.

The tears still flowed. 🙁

No amount of hugs makes up for having to peel those sensors off. He was not happy.

The biggest news of the year is that the cardiologist feels like it is necessary to wait on his next major heart surgery. They will not be doing it this summer. The echos and EKG and all the other tests have shown that his heart is as good as it gets with his condition and that he has time to wait and grow. The next operation will be hard on his lungs and other organs. They want him as big and strong as possible.
They also want more time to understand and solve the trach problems. Having the trach out first would be ideal. At least now we have an answer about this summer and we can move on with planning our lives.

We zoomed to Walmart like he asked to pick up the reward that he had selected before. Then we picked up Trevor from school.

Yesterday, I had my first ever parent-teacher conference at Trevor’s school. He is making great progress on reading and writing his letters and numbers. He absolutely loves all the science experiments and art they do there and is getting along well with the other kids. Having a twin makes him great at sharing too. He wants everything to be fair. He has only one weakness…

He can’t sit still in “circle time” and just listen. Anyone surprised? Both Bill and I have this fault too, the genes were stacked against him.

Our party last night was a really nice night out, the boys had a great time. It is good to see Bill’s side of the family get together. We don’t see them often.