After a long night last night, I have a bit of brain fog. Brendan was very very tired today too and drifted in and out. He did manage to keep all of his formula in his tummy today. No more barfing.
He got a huge IV manifold taken off the IJ line so it is much easier to sit up now. He went from 12 IV pumps all the way down to four as they weaned post-op medications.
He got one of three chest tubes taken out today. I was startled by how long the tube was inside his chest! Yikes!
It was walking day. Brendan finds a way to accomplish his goals every day. He amazes everyone. They told him he had to walk, so he walked farther than anyone thought he could. He was totally drowsy and tired from pain meds and his eyelids were all heavy. But he made a long walk all the way to the end of the hall to look out the window! Unreal!
“I would rather be sleeping, but I’ve got this”
Just his usual, “Ow. Ow. …. Ow.” No crying. He did so well.
He likes to know he is not alone.
Trevor has slept with his musical seahorse since he was a tiny baby and still plays the music at night to fall asleep. Last night when he was wide awake, Brendan said that he wanted to turn on the seahorse. He missed the music from Trevor’s bed. So we brought him one.
It is Bill’s turn to sleep at the hospital tonight. Brendan got Daddy-cuddle-time.
Brendan says he wants to go home, but he doesn’t cry. He woke up from a nap today and said he was ready to go to the Lego store. He said that he was going to need a big Lego set for this.
Trevor and Gramma came to the hospital to visit too but Brendan was a little out of it. Tonight, Trevor and Gramma played NERF War again. Trevor is being spoiled and pampered. Gramma is reading him his story for bed now. We will hope for more forward progress tomorrow.
Good morning from the Lake House! Interesting, complex, Fantastic post!! Good to hear that Brendan is keeping his nourishment in his tummy!! And seeing him walking after all he has endured…priceless!! 🙂 Sooo happy that Gramma is with you!! Yay Super Hero Brendan!!! Yay to Trevor, being a Super Brother!!! Hugs, Love and prayers!!!! 🙂
He is sooooooooooooo amazing. Walking so well even though he would rather be lying down.
What a blessing when he can look back on this hospital stay and say I got upgraded so I could run as fast as Trevor – and is able to forget all the discomfort that must be involved with a tube that long in his chestl. I know what they feel like coming out and it isn’t fun.
Good job Little B you are a hero!!!!!
Hello Bill and Family, Thank you for sharing your story with everyone!! It is great to see little Brendan on a fast recovery!!! He has grown a lot!!!! Praying for a continued recovery and wish you all well.