Trevor was such a big boy, he slept all night in his crib. He only had one bottle at 3am and we all slept in until 8am! He spent all morning with Daddy while I went to the hospital to visit Brendan.
The good news there is that they removed the huge cpap mask and switched him back to the regular high flow nasal cannula. He has been doing well and maintaining his O2 sats in the low 80s, but you can see the difference in his chest. His little muscles definitely cause retractions more when he does not have the pressure support. I am not confident that he will not end up back on the cpap, but we will see.
He is back on morphine now to keep him calm, so he had a pretty good day. He spent some time awake and alert and I even held him for a few hours. When I left, they had given him a pretty strong dose so that they could change the dressing on his PICC, so he should have slept most of the evening. I will be heading back very early tomorrow to miss traffic and be there for rounds. Bill has the day off work for President’s day so he will stay with Trevor again.
This was Brendan when I arrived this morning. He was very squirmy and trying to get out of the cpap.

This was his relief when they switched out to the regular cannula, he still has the marks on his face.

All snuggled in to rest, but giving me the “you are on my list” eyebrows

A little Brendan video, before he finally released the angry brows and relaxed.
Trevor has a hand mirror in his bed so that he can talk to his bee beads and his mirror baby at the same time.




It is nice to see Brendan’s little face without the cpap. Trevor what cool PJ’s you are wearing toda…….
You look into Brendan’s eyes, and you know….He is aware of what’s going on, and he’s not happy about it.
He’s really too little to be in “Between a rock and a hard place” class. :), but I think I caught a glimpse of “Brendan the survivor”…..my heart is lighter, and my hopes are higher now.
Love,
Dad
I have been following your blog since day one I love all the pics of your beautiful boys. I know that Brendan will be fine because he is a tough little boy. They were blessed with such a brave devoted mother like you. I will continue to pray for you and your boys every night. God Bless Erma