Compared to the rest of this week, I would say that Brendan had a good day. He was more tolerant for some things and only had a few little melt downs. Given how much Trevor loves his mobile, I stopped at Walmart at 5:30 this morning on my way in to the hospital and bought a mobile that would work for Brendan. (Walmart is much nicer that early!) Brendan was alert and awake enough to watch the little animals go around. He was on the little hanging zebra like a hawk, tracking its every move.
I came home around lunch time and Bill went back for the afternoon. He was there to see a transcranial doppler exam, they were examining the blood flow in Brendan’s brain. He was very calm for that test too, Bill had to even flip him over and he didn’t fuss too much. He had to have a few doses of morphine today, but they seem to be fairly long lasting for now and are not totally knocking him out cold. We are not sure if the gabapentin is doing anything for him either.
His heart cath is still on for tomorrow at 10am. The bronch hopefully before that, they are trying to work out the schedule. I will be there at 6 again to spend time with him before everything starts.
When I got there, his beanie goat was missing. We did eventually find it in a pile of laundry on the floor, but it needed cleaning so I brought it home. They replaced the goat with a lion, a koala and a black puppy dog.
This is the “I dare you to touch me” warning look
Watching his new mobile
Up to old tricks!!!
Trevor was a good boy today. He used his jedi mind tricks to get a bath from someone newwww.
“hey, I said it was not time to get out!!”
Way to go, Daddy! Trevor looks like he is enjoying his bath. 🙂
You have great pictures of
Brendan today. He sure looks like he likes the new mobile. And, what a little stinker to try to pull out his cannula! That’s the Brendan I love to see. He is so beautiful… and so strong-willed. That is what will get him through tomorrow and all the days after.
We are all praying very hard for him for his procedures tomorrow, and hope that it will bring answers, so that he can begin to make forward progress. He needs to get strong and well so he can play with his brother. What an awesome pair they will be when they can be together again.
Lots and lots of love from us,
MOM
Good Morning from the East Coast!! Many prayers going out that today’s procedure goes smoothly and the answers are clear and precise. Am waving a magic wand and sending many hugs! Hopefully today will be that turning point you all are praying for! We all love you and wish we could be there to lend more support! Thanks for sharing all those precious pictures! Prayers, hugs and love! Aunt Letty 🙂
I too, will pray for answers. I will also pray that they are asking the right questions.
Brendan, when this is all over and done, I’ll ask one of the “Hogwarts kids” to come over and remove all memories of the poking, prodding,taping, tubing, and things stuffed in your nose, so you can have space for more good memories.
oh, and please, do not use “the force” to remove the cannula. 🙂 🙂 🙂