As I drove to the hospital this morning, I was thinking to myself that it seemed like a long time since I walked in and was pleasantly surprised by the news so that I had something good to say on the blog.
Then I walked in to the room, and there was Brendan with his bed all nice and clean, his wires all sorted and untangled, and the ventilator machine GONE. He was extubated last night and skipped over the CPAP and is on 6L/min flow on the high-flow nasal cannula.

He was sleeping soundly

Then I found out from the nurse that Brendan pretty much insisted on being extubated. They were fighting him so much over trying to pull out the tube that the doctor finally gave up and told them to just take it out so he could rest. He had a couple of his meltdowns overnight and needed Ativan and Morphine a few times. The night nurse calls his spells “fits of fury” and says she hasn’t seen such a mad baby in a long time. I think it is the way he locks on to your eyes and stares in to you with his anger, he doesn’t just cry.

He takes a long time to get comfortable after he gets his meds.

He did enjoy his mobile for a while before finally drifting to drug induced sleep

The other pleasant surprise this morning is that they presented some REAL information during rounds about Brendan’s diagnosis. The cardiologist brought me print outs of a few key slices from his CT scan that showed that his left pulmonary artery IS enlarged and located right where the narrowing is in his left bronchus. The enlargement is a normal effect from the PA banding. His airways are not strong enough to resist this external pressure, so what we are seeing may not be just pure floppiness.
The doctors presented several complicated options for treatment of his problem and moving forward with his heart repair. I could type over an hour trying to explain them all, but it all involves surgeries in different orders and lengths of time.
The team is going to carefully analyze the pros/cons of each approach and then get together at their conference on Monday and hopefully make the determination as to the right course of action.
A PLAN sure would make me happier.

I think I know how I am going to motivate Trevor to learn how to crawl! He got real happy seeing the sink filling with bubbles and did his push ups for a few minutes while I got the bath ready.

He spent some more time as astronaut Trevor, coordinating plans with his space minions.

He is still wide awake, hopefully he will have another good overnight sleep. He is doing so well in his crib so far!