Brendan had an OK day today. They started slowly on the new drug and it hasn’t really had an effect. His blood gas levels were the same this morning. He did come down a bit on pressure settings on the vent and seemed to be sticking in about the same place sats-wise.
His tracheotomy is scheduled for Tuesday at noon. It would pretty much take a miracle to avoid that procedure at this point.
He was fairly cranky when he was awake, although I managed to get about 45seconds of happy baby and got one good smile for the camera.
He liked his bouncy chair for a while, but went back to most of the day on his belly. Sleeping prone helps open up his airways.
It is sad how the mask is smashing his forehead and making him look mad while he is trying to have happy face.
Trevor had a morning bath of course
Put a baby in a crabby outfit, get a crabby baby!
Super cute baby!
Even crabby babies eventually take naps.
Cuuuuuuuuuttttteeee smile on Brendan and CUTE butt on “the crabby baby” I will never believe it look at that peaceful baby…..v
Is that a tooth in crabby baby’s mouth, or just a trick of the light?
It’s good to hear that at least Brendan is maintaining his sats. And either way, he won’t have that awful mask by the end of the week, right?
” Put a baby in a crabby outfit, get a crabby baby! ” 🙂
Put a baby in a monkey outfit, and He’ll “monkey around”. 🙂 🙂
Nope, you can’t “mask” a happy face. Way to go, Brendan !!
It’s amazing how seeing you smile, can make all the rest, seem a bit less intolerable. Stay strong, and as your Great Grandmother (Juengst) used to say,
” This too shall pass ”
Love, hope, and lots more prayers
Good morning! Brendan your smile is so beautiful and it just shows what a remarkable little guy you are. Keep being strong and show us all how amazing you are and how you are going to surprise us all everyday by getting better. Trevor, you are sooooo cute. Keep on growing and helping your mommy and daddy smile everyday. Thank heavens for little boys. That saying is so appropriate for you all. Keeping you in our prayers. The Ibarra’s.