Happy Birthday, Gramma!
We wish we could have been there for peach cobbler and celebrations. We all hope it was a great day.
I have a little video message from the boys that might need a bit of explaining.
Brendan made his while waiting at the doctor’s office. I guess I pushed too hard for a performance because at the end of his part, he takes his ID bracelet from the doctor and slides it over my phone to cover the camera!
We have hit the official hot part of the AZ summer. All next week, temperatures are going to be above 110. The part I don’t like thought is the overnight lows get down to mid 80’s. Yuck! Officially air conditioning 24 x 7 time. You will see lots of blog posts with boys wearing very little.
I couldn’t hire a Hawaiian fire dancer for a birthday performance, but Trevor has the next best thing with his “fire scarves” and his hot summer birthday dance.
Brendan had his big aero-digestive council meeting this morning and it was awesome! We met a new ENT that will do the procedures to prep Brendan’s airway. They may have to remove some granulation and scar tissue. Brendan often makes his owl sounds when he is nervous, and because of that we found out that the doctor is a huge owl fan too. They “talked” owls and birds of prey for a while. 🙂
We met an awesome new GI doctor that will take Brendan on to be her long term patient going forward. She is ordering a complete upper GI study plus an intestinal biopsy. Separately, next Thursday, he will also get a GI “emptying” study done in radiology.
His pulmonologist just ordered a bronchoscopy to check his airways.
The exciting part is that they are going to schedule all the procedures together (minus the radiology one that needs no anesthesia). He will go in and be admitted. Barring anything unusual, he will move to a room to recover. They will take the trach out and he will sleep there. If the night goes well, he could come home the next day with no trach!!
It could possibly be the end of July, we are waiting on schedulers to call and make it official. About six more weeks, no trach!?!? Hard to believe!
I love my video birthday messages from the boys!!!!! 🙂 🙂 🙂
Brendan’s message is so cute and funny, too! He talks so well now, and his humming was adorable. xo
Trevor’s dancing is great!! And his singing, too! He is so full of energy, and makes me smile. So to Trevor… “thank you very much”!
I loved your bow! xo
I was so happy to hear Brendan’s news today. It’s so wonderful that he’s down to just weeks to go with the trach!
We had a wonderful dinner made by Aunt Heather, Kayla and Ashley. We wish you all could have been with us. Thank you for my new “heavy blanket”. You always surprise me with something! I had so many nice birthday wishes, and flowers, and chocolate, and gifts. I appreciate everything so much. 🙂
Lots of love and big hugs,
Gramma xoxoxo
Happy birthday, Gramma! Those were some great performances. 🙂
So excited to hear that the trach may be out so soon – Go B, go!!
Good morning from the, they are putting up the cabinets today!!!, Lake House!! What a fantastic post!!!! Gramma’s birthday wishes were terrific!! Trevor will be on Dancing With The Stars!! 🙂 Brendan’s news is simply amazing!!!!! 🙂 I have happy tears in my eyes for all of you!! I have my accutrack weather app on my phone and include Chandler as a location….I keep getting alerts (they come out loudly), thinking it is a tornado warning….nope, it is excessive heat warnings for Chandler!!!! Praying that your air conditioner can handle the stress!!! Yikes, you are warm!! Prayers, hugs and love!!! 🙂
OK…….The boys are singing, Trevor’s dancing. Here, the rains have passed, the sun is shining, the sky is blue, and it’s a beautiful day in “beautiful downtown Vernon Hills”.
Thanks to this blog, the day is off to the greatest start, and then…….and then……
“No more Trach” is just around the corner !! 🙂 🙂 🙂 🙂
YUP ! It’s a good day. 😉 🙂
What awesome news for Brendan! He could be free of that trach and be able to swim and everything!