Recovery has been tough this week. It is hard to get Brendan to slow down, he wants to run and play, but he sounds terrible. Of course Trevor got sick, then Brendan got sick, and as of this morning, I am sick now too. It is just dripping noses, sneezing, coughing colds – with suctioning every 20-30 minutes all night. It just means very little sleep for Bill and I.
The worst news came from talking to the ENT on Friday. The next step for Brendan will be to do a bronchoscopy with no anesthesia. They have scoped him twice and have found no problems, but we were told that the sedation significantly interferes with the results.
So Brendan will have to be restrained while they put a camera through his nose, and one through his trach to try to identify where the problem is in his airway.
We have also been told that the likely next step will be tracheal reconstruction. That involves removing cartilage from around the ribs and using it for grafts around the trachea to support it.
Brendan’s horror-scope will be done on November 3rd. I hate that he has to experience these things.
He just gets wiped out
I have been trying to keep them both calm and resting to recover. It seems that when they are sick, they get more hyper.
The boys were fascinated with the juicer and wanted to put the whole fridge through the machine.
Tonight was the “SuperBloodMoon”. It was a total lunar eclipse that coincided with a supermoon, aka moon at its perigee, aka closest point to earth in its orbit. I had planned months ago to find a location to go do some photography and Bill was going to stay home with the boys. I rarely make plans like this, and it seems they always end up surrounded in dramatic times. I felt like crap, but went out anyway. A SuperBloodMoon won’t happen again until 2030 or something.
I visited a Riparian Preserve and spent way to much time doing circles around a lake looking for a place to set up a tripod. There were some cool birds to see, but not many good views to the East.
There were a TON of bunnies. If cute little bunnies fed like piranhas, I would have been stripped to the bone in minutes. There were so many bunnies.
I missed the moonrise which was the whole point of going away from home. I had to sneak shots through the trees.
I was having trouble with focusing, and then I was chased away from the lake by some large mystery animal that waded into the water. I have no idea what it was. As a raised my flashlight, it darted to the bushes again. Time to go!
The rest was shot from my driveway since the moon was high enough in the sky.
We are all hoping for a good night of sleep. Maybe SuperBloodMoon is lucky.
Hoping Brendan’s bronchoscopy, doesn’t turn out to be that “Horror-scope”. 😮
“Super Blood Moon”….beautiful pictures of a rare event. I did get a chance to see most of it last night.
Good morning from the East Coast!! Oh my…so sorry that you overcome one hurdle, then there’s another!! 🙁 May all of you heal quickly and prepare for your next steps!! Uncle Rich and I do hope to see the Grand Canyon and you, but will wait until your family is cruising on a nice smooth road, without these speed bumps!! Your super-moon pictures were beautiful…was a bit cloudy here, not quite so dramatic…but awesome!!! Hang in there!! Just know that we think of you every day…all of us wishing that we lived closer to ease your burden!! Prayers, hugs and love!! 🙂
Those are terrific pictures of the super blood moon! We watched it for awhile in the backyard. It is a significant sign in the sky! Very rare!
Sorry Brendan has that horrible procedure coming up. I just had one of those a month ago, because they found some growths in my left lung. I had anesthesia though. They took 19 biopsies and it still was inconclusive. So I am back on stronger chemo as well as meds for a fungal infection, in case that is what it is.
Crazy stuff. In spite of all that, I feel your daily juggles and struggles far surpass anything I face. You are in my prayers, both you & Bill. God bless you, keep you in His care, and give you peace in the midst of it all. Love you!
For some reason, I was getting some kind of notice on all three blogs that something was wrong with them, and I wasn’t able to see them until a short while ago. It seems to be fine now.
I am so sorry to hear that you and the boys are sick and miserable. The pictures you posted on FB of the Supermoon were amazing! I never expected to open the blog and see what a bad night you had after that.
Poor Brendan having to have a bronchoscopy with no anesthesia! Poor you having to help hold him down! He really needs to have a break and have things go smoothly.
Sending love and hugs, and wishing I could be there now to help.
Gramma xoxo
I am so sorry B has to go through that testing. I hope it is quick and that he bounces back from it quickly too. And that you get some real answers to make it all worth it in the end. Big hugs to all of you.