After failing the transition to the home vent last night, Brendan had an OK night. He is back on NAVA until he gets stable again and they will continue to work on weaning him down in settings. Maybe in a few days they will try to do a switch again.
He is burning a fever today, so his antibiotics were continued and a bunch of blood and mucous cultures were sent to the lab for tests. The doctor does not think it is infection, it is probably a side effect of withdrawal, stress, air hunger and work of breathing. They have to do the cultures anyway to be safe. In the middle of the night, Brendan managed to pull his ventilator tubing loose from the trach so he has the stress of that event to add to his discomfort.
This morning I was going in a little later than usual. I called in to check on him and get an update on rounds from the nurse. He used the opportunity of the nurse being at the desk on the phone to pull out his feeding tube! Two people and an xray later, it was back in place. A little tylenol and a cool washcloth later and his fever was lower too.
“You see, it’s like this.. the tubes were flying out all by themselves, and I was just trying to make sure they stayed in place. I don’t need this sock on my hand!”
“If you believe that, I have a bridge to sell you!”
Pulling tubes is exhausting work
They are trying to use tape to cover the loops where he sneaks his fingers in. I’d pull that mess off of my face too.
Looking cute under his cool washcloth
Trevor’s biggest problem is that he is too photogenic! I have a hard time sorting through all of the pictures that Gramma takes during the day to pick the best ones for the blog. All of his varied expressions totally crack me up. He had two poops and two nice long naps today, so he is a different little boy.
“The camera again? Can’t you see I am trying to read?”
Too many interruptions, he is just going to get the info via osmosis.
We are going to have to watch the Gramma, she was test fitting Trevor in to her carry on!!
Peekaboo TSA!!
And to answer Aunt Heather’s question, Trevor is a true Arizona baby. When it gets warm late in the day, he sheds! He likes to get out of his clothes to watch Wheel of Fortune, then have a bottle and get in to his jammies for the night. It is cute now…
Good Morning from the East Coast! Aha, I warned you months ago that Gramma was plotting! Nice fit Trevor, that suitcase is perfect!! 🙂 Brendan, guess you weren’t paying attention on the “tubes/versus stuffed toys lesson”. However we do understand that those “tubes” are annoying and oh, so much fun. Hope your fever is gone by the time Mom reads this blog and that you are your charming self. Lots of prayers, tons of love and many hugs!! 🙂
Hi Tiff,
Our continuous wishes for Brendan recovery, he has come a long and painful way
but he is not ready to give up. Your extraordinary spirit and love surpasses any threats. My prayers are with you and your babies daily. Keep up the great job and thank you for allowing me to be part of your family. Love and prayers.
First fever for Brendan! I hope he feels better soon. I would want to yank all of that stuff out and off of me too. One day, that will all be gone and you will get to be a regular little boy! Just wait until Trevor is old enough to strip his own clothes and comes streaking around a corner. Teehee!