This post is only about Brendan’s sleep study. We got lucky because I think everyone in the family is fighting off another little head cold. Brendan kept it away long enough.
Here is the prep part. There are leads and wires everywhere!
They put the EEG leads on his scalp with this thick goo. I am so shocked he tolerated it.
The goo doesn’t actually stick so well, otherwise it would adhere to his hair. SO his whole head gets wrapped up to keep the leads in place. 12 total I believe.
Brendan’s best buddy right now is CJ7. (From the movie CJ7) CJ7 had to get leads and a head wrap too.
I was totally shocked that Brendan let her put on the CO2 sensor and tape it to his face. It had little prongs that went in to his nose.
He is checking out their looks. He said the CO2 sensor made him look like scuba batman
Good thing he was so tired! He did not cry even a tiny bit. He was a little comedian and entertained the technician. He asked her if the robot hospital bed had stabilizers and hydraulic actuators. She was surprised.
I have already heard back from the pulmonologist’s office. The sleep study results were all good. There were no apnea events, there was good saturation and respiratory rate. He hit all the stages of sleep. He had a sleep efficiency score of 87% which is not “excellent”, but totally normal. Given the conditions, I am happy with those results.
Now we wait for the next meeting with our aerodigestive team to determine the next steps.
Brendan really wanted the Paw Patrol Air Patroller as his reward, but Walmart was out of stock. He didn’t want to wait for Amazon to bring it so he picked the Lookout playset instead. He has played Paw Patrol all day.
CJ7 got a reward too. His antenna fell out a while back so today he got a new upgraded antenna sewed on. Brendan was happy. He went to bed at 6:45 tonight. He was so tired!
SO happy to hear that the sleep study went so well. Brendan did an amazing job with all of the leads and wraps and things up his nose. Yay, Brendan!! He’s really becoming more tolerant of all of these tests and procedures.
Sorry to hear you’re all fighting colds again. I’m glad it didn’t cause an issue with the sleep study. Feel better soon!
I hope the next step in the process of removing the trach permanently goes well.
I hope Trevor still loves his new school. So many things going on at your house!
Lots of love and hugs,
Gramma xoxoxoxo
God bless the little guy he did so well sounds like the results will be good to hope to see you on the 13th and for the Bock and possibly the 20th but I will call you to find out where you want me to be For the walk.