I had a couple of pictures in my phone from earlier this month. Trevor had a test and earned his red “tip” on his white-stripe yellow belt. He will need to earn the black tip before he will be eligible to test for his black-stripe yellow belt. He is making improvements in his coordination and strength. We are proud!
Brendan wanted me to take this picture of the ship we all made together at the LegoLand Discovery Center.
We squeaked in a trip to ZooLights right before it was about to end, and then found out it was extended another week. We are still glad to go. It is fun to see what they change every year.
Brendan saw the cardiologist on Wednesday. He had an EKG and an Echo and did such a great job. Not one tear, not even a frown! He was awesome. The doctor ordered Brendan’s heart cath procedure to be scheduled. It will be done sometime in the next few months. They will thread the catheter from his thigh in to his heart to take measurements of the pressure and circulation. They will also thread through his neck into the “Glenn Circuit” to measure the pressure in his pulmonary arteries and his lungs. This is crucial to preparing for his final heart surgery.
If his lungs are ready, the plan is to go forward with the surgery this summer.
Brendan starts the Intensive Feeding Program on Monday. We will be driving to the Children’s Hospital five days a week for 1-3hrs of therapy each day. That goes on for five weeks, then we transition to 2 times a week for three weeks and then once a week for two weeks. It will be a challenge.
Once he is done with Intensive Feeding, he should be starting to attend some preschool classes at the school instead of at home. Our calendar has never been so full. We managed to squeeze in another month of swimming for Trevor too. He loves it so much.
If you don’t hear from me much, I apologize. I haven’t been great at returning messages, I need to get caught up!
This seems to have become a very busy time for everyone in our family. There is so much going on.
Congratulations to Trevor on his achievements in his martial arts class. It was fun to see the little ones having so much fun while learning something at the same time. It’s nice that he enjoys his swimming lessons, too.
It’s nice to hear that you got to see zoo lights after all. I’m sorry we couldn’t get it in while I was there,.
Great job, Brendan! You are doing so well getting your tests done now. I hope it all goes well with good results leading up to his surgery. And wow, what a schedule you’ll have for feeding camp! You don’t have enough hours in a day! Good luck with good results with that, too. Some day Brendan will be tube-free. 🙂
It is really COLD here! At least it’s not snowing!
Lots of love a big hugs from Gramma! I wish I could help you to make things easier.
xoxoxo
Good afternoon from the East Coast!!! These past two blogs are just filled with awesomeness!! 🙂 Yay for Trevor with Karate and swimming!!! Yay fro Brendan with legos and testing!!! Yay for both with their snow and fog adventures!! Sure wish I could package some extra hours in the day for you!!! Sure could be useful with all your future carpooling needs…yikes!!! Hoping Brendan’s testing goes as planned and he has a smooth course to wellness!! Hugs, love and prayers!! 🙂