Week 36 – Day 7

We had quite an adventure today. Brendan managed to throw up his tube again this morning right before we were going to leave for the hospital for his tests. I had a very hard time getting it put back in this time and he got really upset right before his travelling. Just when I was ready to give up, it went down, and we got out the door just in time.

Brendan had his contrast study of his colon in order to prep for his upcoming ostomy reversal surgery. Not many people can say they have been told that they have a beautiful colon, but Brendan can. The doctor doing the test thought everything looked great. This xray shows how much improvement his lungs have had, how “beautiful” his colon is, and what perfect placement we got on the feeding tube. All good news!

He also had bloodwork that was all good and he has reduced 5 more doses of drugs from his daily routine, 3 things have been eliminated. He handled everything so well! He came home to a couple hours of nap and then he had physical therapy. He also started a daily dose of Singular to help dry him up a little and maybe prevent some of the tube hurling mornings.

This is Aunt Shannon’s last night here. She had to spend the whole day with Trevor while Brendan was getting his tests done. She spent a lot of play time this evening with both boys while Brendan could keep his eyes open. We wanted to put both boys in matching firetruck pajamas but they were too tired. So Brendan got to be the “fire” in a blanket and Trevor was the firefighter in jammies.

When Brendan thinks something is really silly, he doesn’t just smile, he crinkles his nose up. This is a full crinkle for Aunt Shannon.

The boys will miss her I think, she spoils them!! (you just can’t help it, they are overwhelmingly cute!)

4 thoughts on “Week 36 – Day 7

  1. Trevor tried to keep me here tonight by not letting me leave him alone in his room to sleep. I will miss them too!

  2. Awesome news. I just love the crinkle in Brendan’s nose and the expressions Trevor gives are priceless. In my daily prayers …..Did Brendan get a surgery date as yet? v

  3. Well, Brendan now has a keepsake picture of his guts. Cool! Glad to see that all is well on the inside, and the more drugs that go away the better. That crinkle…sure looks like the family “funny face” to me!

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