{"id":10194,"date":"2013-07-10T21:23:23","date_gmt":"2013-07-11T04:23:23","guid":{"rendered":"http:\/\/projectbat.com\/minibat\/?p=10194"},"modified":"2013-07-10T21:23:23","modified_gmt":"2013-07-11T04:23:23","slug":"year-2-week-37-day-7","status":"publish","type":"post","link":"https:\/\/projectbat.com\/minibat\/2013\/07\/10\/year-2-week-37-day-7\/","title":{"rendered":"Year 2 &#8211; Week 37 &#8211; Day 7"},"content":{"rendered":"<p>The roller coaster life continues. It wasn&#8217;t that there was anything bad that happened today, it was just the kind of day where insecurities were magnified. Anxiety, fear, doubt, and worry plagued me all day, just because it builds up and we all do our best to stay focused and positive on a daily basis.<br \/>\nThe new OT team lead brought a speech therapist with her today to do Brendan&#8217;s speech assessment. I literally was speechless for a while when she said that she has NO trach experience and she didn&#8217;t even know what his speaking valve was. Really?? Did I just not wake up yet today and am I still having a nightmare about therapy? How do you even become a speech therapist without understanding how a trach works?<br \/>\nI have started to realize that I am putting too much faith, hope, and expectation in to early intervention services. I somehow expected professional service providers to be educated.<br \/>\nI need to step up my efforts with both of my boys. We have some changes that need to be made and the first is going to be a huge cutback in the amount of digital entertainment. I feel like the TV, iPad, and phones are getting out of control and I let it happen. I promised myself that I would not have the kind of kids that would always be buried in electronics and that is the path that we are on.<br \/>\nTrevor and I have another outing with the Mom&#8217;s group in the morning. We are going to continue to expand our social activities and try to find things that Brendan can do too before cold\/flu season comes back around again.<\/p>\n<p>We continue to eat dinner at the table and give Brendan food every night.<br \/>\n<a href=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237b32.jpg\"><img decoding=\"async\" class=\"alignnone size-full wp-image-19\" title=\"Week 37 - 237b32.jpg\" src=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237b32.jpg\" alt=\"\" \/><\/a> <\/p>\n<p><a href=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237b33.jpg\"><img decoding=\"async\" class=\"alignnone size-full wp-image-19\" title=\"Week 37 - 237b33.jpg\" src=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237b33.jpg\" alt=\"\" \/><\/a> <\/p>\n<p>It is hard to applaud Brendan for playing with his food and then tell Trevor not to play with his food. He just wanted to scatter rice everywhere and drop more on the dog.<br \/>\n<a href=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237t44.jpg\"><img decoding=\"async\" class=\"alignnone size-full wp-image-19\" title=\"Week 37 - 237t44.jpg\" src=\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/07\/237t44.jpg\" alt=\"\" \/><\/a> <\/p>\n<p>The good news of the day is that Brendan&#8217;s oxygen was turned down again and now he is on only 1L of flow. Bit by bit, he gets stronger.<br \/>\nWe should have sleep study results and a new plan in the morning too. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>The roller coaster life continues. It wasn&#8217;t that there was anything bad that happened today, it was just the kind of day where insecurities were magnified. Anxiety, fear, doubt, and worry plagued me all day, just because it builds up &hellip; <a href=\"https:\/\/projectbat.com\/minibat\/2013\/07\/10\/year-2-week-37-day-7\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-10194","post","type-post","status-publish","format-standard","hentry","category-updates"],"_links":{"self":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/10194","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/comments?post=10194"}],"version-history":[{"count":1,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/10194\/revisions"}],"predecessor-version":[{"id":10195,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/10194\/revisions\/10195"}],"wp:attachment":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/media?parent=10194"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/categories?post=10194"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/tags?post=10194"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}