{"id":11433,"date":"2013-10-03T22:01:38","date_gmt":"2013-10-04T05:01:38","guid":{"rendered":"http:\/\/projectbat.com\/minibat\/?p=11433"},"modified":"2013-10-03T22:04:04","modified_gmt":"2013-10-04T05:04:04","slug":"year-2-week-50-day-1","status":"publish","type":"post","link":"https:\/\/projectbat.com\/minibat\/2013\/10\/03\/year-2-week-50-day-1\/","title":{"rendered":"Year 2 – Week 50 – Day 1"},"content":{"rendered":"

I have been waiting for a low-picture day to be able to post this info. On October 19th, we are all participating in a charity 5k walk to benefit a non-profit organization called HopeKids. Brendan recently became a HopeKid and we have already grown to appreciate what they are about. We look forward to getting out and being able to do things that are made accessible for special kids. We connect with other families that share our struggle. It is a drop of sunshine in the gloom for so many families.<\/p>\n

More info about the organization on the Hopekids.org website
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We have our team together – “Li’l B’s Crew” and we are fundraising for Hopekids. We have been training for the walk and we are getting stuff together to make our own special shirts too! It doesn’t matter if you can only donate $1, please help Brendan’s team raise as much money as we can for HopeKids!<\/p>\n

Click here to make a donation for Brendan’s team’s goal!<\/strong>
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I am not a great salesman, but I hope you believe me when I say this is a very good cause. If you are interested in walking with us that day, please let me know asap!<\/p>\n

On a regular blog note, Brendan has some big challenges coming up starting tonight. We saw his GI doctor today and got a whole new plan for his food intake. He currently gets about 40oz of his formula mix through his tube each day. That is not changing. But instead of his current plan of steady drip for 19hrs a day, he will be getting all of his food in 9hrs, divided in to nine 1hr segments. It is going to be a big challenge for his little digestive system, but it is a step in the right direction to getting him to eating meals at mealtime. I am nervous for him, so we are going to sleep and dream about a day with no vomiting tomorrow. He can do it! It is extra work for us, starting and stopping his pump all the time, but it is just a step along the path and should change again soon if he does well.
\nHe is also starting some probiotics to help correct all the damage done to his “flora” with drugs. The doctor was happy with his weight and growth!<\/p>\n

Trevor was a very good boy at the appointment too and ran some errands with me this afternoon. His new favorite word to say is “SCISSORS”. A two year old that loves scissors is just what I need!!<\/p>\n

I really don’t have pictures from today, so I had to go to the iPad and see what Brendan has been up to with the camera. He’s got quite a gallery going.<\/p>\n

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I have been waiting for a low-picture day to be able to post this info. On October 19th, we are all participating in a charity 5k walk to benefit a non-profit organization called HopeKids. Brendan recently became a HopeKid and … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-11433","post","type-post","status-publish","format-standard","hentry","category-updates"],"_links":{"self":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/11433","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/comments?post=11433"}],"version-history":[{"count":9,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/11433\/revisions"}],"predecessor-version":[{"id":11447,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/11433\/revisions\/11447"}],"wp:attachment":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/media?parent=11433"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/categories?post=11433"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/tags?post=11433"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}