{"id":1622,"date":"2012-03-15T21:30:06","date_gmt":"2012-03-16T04:30:06","guid":{"rendered":"http:\/\/projectbat.com\/minibat\/?p=1622"},"modified":"2012-03-16T22:18:44","modified_gmt":"2012-03-17T05:18:44","slug":"week-20-day-3-2","status":"publish","type":"post","link":"https:\/\/projectbat.com\/minibat\/2012\/03\/15\/week-20-day-3-2\/","title":{"rendered":"Week 21 – Day 3"},"content":{"rendered":"

Brendan had a rough night, he had a really hard time being comfortable and was slowly dropping sats. By 4am, the nurse was telling me that intubation was going to be required and that she had gotten the doctor. Fortunately, the doctors held out and Brendan came around and started to improve again by 6:30am. In fact, by the time they did rounds at 9:30am, his lab work was better, his chest xray was better, his monitors were better, and his appearance was better.
\nBrendan’s current intensivist and his pulmonologist are a husband\/wife team and they have spent a long time discussing Brendan and his treatment plan. She suggested a new steroid treatment that they started last night and so his improvement today may be due to that kicking in. They both stopped in frequently all through the day to track him, and it makes me feel good that they have taken such great interest in him.
\nShe also got preliminary results back on the lung biopsy they took Monday. So far, it definitely indicates “preemie lung”, chronic lung disease caused by incomplete development. No surprises there, they are continuing to run studies.<\/p>\n

Brendan had an awesome nurse today, and I also really like the one that is starting for tonight, it makes a HUGE difference. <\/p>\n

Here is Brendan in his bouncy seat in his big boy bed!
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His swelling is greatly reduced and he is starting to look more like himself.
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His color is pretty bad, although it fluctuates pretty wildly. He has been REALLY blue at times today, it is really scary. He did have several hours of awake time where he was not crying. When he does cry, it is still a pretty weak little whimper\/squeak sound but his voice is starting to come back. A few more days and he will be waking up the whole floor like he used to.
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Trevor has had a little issue since last week when he had his immunizations. Some glycerin was all he needed and now he is feeling so much better. Three seriously full diapers in about a half an hour makes him a whole new baby.
\nHe is working on his talking every day now, especially when he is lying on his changing table. He makes a specific sound that is a lot like “hellloo” and “hi” and then he will just say “gooooo”.
\nAnd he knows where is feet are now!
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I got Trevor some spoons to play with. He seems to know just what to do with him. Once his regularity returns, he will be ready to try a little bit of rice cereal!
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Bill is staying overnight with Brendan tonight, and I am home to try to sleep. We heard tonight that one of the two babies on the floor that were there waiting for a heart transplant got her heart today! She is still in surgery now, that whole ward is anxiously awaiting to hear her come back to her room!! I can’t wait to hear tomorrow about how she is doing – the transplant itself is only the beginning of a very challenging and short life.<\/p>\n","protected":false},"excerpt":{"rendered":"

Brendan had a rough night, he had a really hard time being comfortable and was slowly dropping sats. By 4am, the nurse was telling me that intubation was going to be required and that she had gotten the doctor. Fortunately, … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1622","post","type-post","status-publish","format-standard","hentry","category-updates"],"_links":{"self":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/1622","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/comments?post=1622"}],"version-history":[{"count":3,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/1622\/revisions"}],"predecessor-version":[{"id":1628,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/1622\/revisions\/1628"}],"wp:attachment":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/media?parent=1622"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/categories?post=1622"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/tags?post=1622"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}