{"id":2322,"date":"2012-05-16T22:05:02","date_gmt":"2012-05-17T05:05:02","guid":{"rendered":"http:\/\/projectbat.com\/minibat\/?p=2322"},"modified":"2012-05-16T22:13:58","modified_gmt":"2012-05-17T05:13:58","slug":"week-30-day-2-wow","status":"publish","type":"post","link":"https:\/\/projectbat.com\/minibat\/2012\/05\/16\/week-30-day-2-wow\/","title":{"rendered":"Week 30 – Day 2 – WOW!!!"},"content":{"rendered":"

Let’s all go to the lobby… let’s all go to the lobby!
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Ok…..BACK UP!<\/p>\n

I was going to go to the hospital early this morning because a rep from the state long term care program was coming to assess Brendan. But an accident on the freeway had the whole thing shut down and I figured traffic would be a nightmare. So Trevor and I went through his normal morning, and he was having a nice nap.
\nAnd then the phone rang!
\nThe discharge nurse wanted my consent over the phone to transfer Brendan out of the ICU to a small hospital where we can do our training and prep for homecoming! All I could say is WHHHHAAAAAT? TODAY?!! <\/p>\n

Trevor and I packed up and got to the hospital as quickly as possible. Trevor actually slept the whole way there, it was nice he was able to continue his nap. <\/p>\n

When we walked in, word had gotten around and everyone we passed was saying congrats. Brendan was out of his crib, sitting on the floor in a bouncy, wearing a tshirt and looking too cute just waiting to get the heck out of there!!<\/p>\n

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One of the things we had to do is have Brendan’s friend Jennifer from Child Life finish updating his Beads of Courage. I posted about it before, but if you don’t remember, Beads of Courage is a program for kids where they get different colored beads to document their hospital stay. It tells their story of treatment and gives them something to look back on later. I really love the program and Brendan has quite a string going. Just for example, he gets one yellow bead every time he sleeps overnight in the hospital. He gets a rainbow bead every time he has PT, a red bead for every transfusion, a glow in dark for every echocardiogram, a pale green for every xray, etc. He gets gorgeous hand made beads for milestones and significant days of courage.
\nhttp:\/\/www.beadsofcourage.org\/<\/a><\/p>\n

Brendan has an almost 40ft long string going back to his birthday!
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It turned a lot of heads today to have his beads there for discharge. The staff all know what it means and many were pretty amazed at Brendan’s journey.
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He will keep collecting his beads for clinic visits and echos and shots and things, even when he eventually goes back for his next heart surgery. <\/p>\n

Trevor did such a good job today being a happy baby, especially with all of the chaos! He just got a little slaphappy!
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Good thing there was still room for Trevor in the whale after we got all of Brendan’s stuff packed!
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Bill helps the transport team from the other hospital get the car seat set up right for Brendan! He didn’t have to take an ambulance, just a nice transport van.
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All ready to go!
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Jennifer even made Brendan a going away poster and got all the staff to sign it for him. It is really special – there are so so so many people that have been involved in his care these last few months!
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He is all settled in for now in his new room. We had too much work to do with admissions paperwork and helping the staff get to know Brendan so I did not take pictures yet in the new place. I will work on that part tomorrow! We are so excited and proud of Brendan. He may come home as early as the 28th. What a perfect birthday present that would be for me!!<\/p>\n

We have work to do to get ready! We’ll be interviewing a nurse on Friday for his at home overnight care. I could go on and on, but I will save the rest for tomorrow’s blog. Very good night!!<\/p>\n","protected":false},"excerpt":{"rendered":"

Let’s all go to the lobby… let’s all go to the lobby! Ok…..BACK UP! I was going to go to the hospital early this morning because a rep from the state long term care program was coming to assess Brendan. … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2322","post","type-post","status-publish","format-standard","hentry","category-updates"],"_links":{"self":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/2322","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/comments?post=2322"}],"version-history":[{"count":3,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/2322\/revisions"}],"predecessor-version":[{"id":2326,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/posts\/2322\/revisions\/2326"}],"wp:attachment":[{"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/media?parent=2322"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/categories?post=2322"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/projectbat.com\/minibat\/wp-json\/wp\/v2\/tags?post=2322"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}