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![\"\"](\"http:\/\/projectbat.com\/minibat\/wp-content\/uploads\/2013\/05\/228t30.jpg\" "\\"Week")
<\/a><\/p>\nHe moved out all of the oxygen tanks for refills He moved Brendan’s crib out and swept up all the dog hair He cleaned the counters He took care of Brendan He kept Brendan’s wires all untangled He cooked dinner and fed himself some mashed potatoes Brendan says, “If you believe all that malarkey, I have a bridge to sell you” “I am outta here” Truth is, we were all very busy today and Nurse Jen was here taking great care of Brendan. We had a bit of a scare last night as Brendan’s sats continued to drop. But some vigorous CPT (patting chest) and holding him upright and he finally slept deep enough to allow the vent to do its job. He fights it otherwise. His numbers recovered enough that we stopped thinking we were about to head to the ER.<\/p>\n He still had crappy numbers today, but you wouldn’t know it if the oximeter was turned off. He rocked PT today, played, laughed, climbed and threw up a lot less. He had some OT fun too. We go to see the pediatrician tomorrow for his 18mo checkup and follow up on this illness. Today was a piece of cake!! I had some little drinks with umbrellas and put my feet up, and TREVOR did all the work for me! He got in the mail and supervised the collection of the garbage He moved … Continue reading
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\nThe pulmonologist has ordered ventilator during naps and overnight until we see her again on the 24th, and she prescribed a steroid burst for 5 days to help his immune system battle this infection. He still gets breathing treatments and antibiotic.
\nOnce again, we all miss hearing his voice. We hate obsessing about those little glowing numbers on the oximeter and staring at them with all of the power of our wills to get those numbers to improve.<\/p>\n","protected":false},"excerpt":{"rendered":"