So we thought last night when the nurse mentioned extubation for Brendan that it was a little bit shocking. We made it to the hospital in time to hear the doctors’ rounds today and they all agreed that while most children that go through the PA banding surgery can be extubated the next day, Brendan was a different case. He is on pretty high vent settings and they are going to go for a slow wean before they do anything drastic. Their first goal is to get him off of the blood pressure medications and get him through his antibiotic treatments. He is doing very well for a baby just having had his procedure and he is starting the recovery process.
His cardiologist gave him two big thumbs up today. The surgery nurses said that his gut incision is healing well. His ostomy is working.
He still has significant edema, especially in his head and face but it will continue to go down. This is normal too, it just will take time.
He was awake and alert again this morning and seems to be fairly comfortable. He only cries when they clean his chest tube or try to move him too much.
Trevor is doing very well at home. We are very lucky that he is such a good baby! We are also very lucky and grateful that Mom is here to take care of him while we make trips to the hospital. She is working hard to lighten the load for us and I even got a nice long nap in this evening.
We gave him his first bath at home tonight! There was no weird nurse singing in his ear and he still didn’t cry, he seemed to enjoy it.
He did try to eat lots of bubbles.
I bought this big fluffy bear almost 5 years ago in an after-Valentines-day clearance at the grocery store in a total impulse. My hope was that he would be my prop for taking photos with a baby to be able to see the baby’s growth over time in relation to the bear. The bear sat on a box in the corner of my room all this time getting covered in dust. No more neglect, he is ready to get to work! Bear & a baby photo #1! Hopefully there won’t be too many of these with just one baby in it.
The dogs are still trying to figure out just what is going on and why this pink squirmy thing is still here.
Tiffanie, Bill, Trevor, Brendan and Gramma….good morning from the east coast!!
What a wonderful way to start my day, seeing all those priceless pictures of my precious grand-nephews! Thank you for sharing! Always in our hearts, always in our prayers! Many hugs!! Much love!! Sending you healing thoughts! 🙂
Great news on Brendan’s recovery. Tiffanie and Bill, you are so blessed to have these precious angels. Trevor is doing so good. Wow. I like the Teddy bear, soon he will be holding two little boys in in paws… Thank you for the updates. Always on my mind and especially in my heart.
I am glad Brendon’s recovery is coming along so nicely and can only imagine how hard going through this must be for both of you. I am delighted Trevor is home and doing so good and that your Mother is there to help. You all remain in my thoughts and prayers always. Thank you for the updates and keeping us posted.
So glad Brendan’s continuing to make such progress with his recovery. He’s an amazing little trooper! The pics of Trevor in the bath made me smile. He’s so adorable! Mike wouldn’t cooperate when I tried to give him one (bath) in the kitchen sink to reminisce. ;). Miss the days of being little cuddle bugs.
Love you all! We’re continuing to send good juju out to you all. Hugs to Aunt Cindy too!
The looks on the dogs’ faces are precious. They know they don’t dare lick, much less nibble. 😀 Seeing Brendan’s pictures makes me want to reach into the pics and love on him. I am doing so from a distance, and sending it your all’s way too.