Our home care nurse paid a visit today. Brendan’s weight is exactly the same as it was on Tuesday. He was at the end of his break between feeds so he had a very empty belly today. That can really make a difference when you only weigh 7 pounds. The nurse was happy that there was no weight loss, and we will see what he weighs again on Monday. A few extra days will be good to see real change.

Because the oxygen causes Brendan’s nose to be so dry and his nasal passages to get thick, the nurses recommended hot steamy air every once in a while. I took Brendan in to the bathroom while I ran a hot shower and steamed him for a while. He was very comfortable in there until I opened the door to get my camera and let it the cold air. So we have unhappy Brendan picture.

Aunt Heather #1 bought Brendan the same swing that he had in the hospital and it arrived at the door today. It is a gentle rock vs the big swing and he really likes it. He spent some time in there happy today until he got too hot.

Keeping Brendan cool is a challenge. He wants the confinement of being swaddled, but he just gets so sweaty and hot in blankets. I found a compromise that seems to work for now. If I put him on his side and bolster him with his nest pillow, his hands stay “centered” like the therapists want. Gravity gives him the confinement of his arms, and his skin is able to breathe. I would think he would be cold, but he has been sleeping comfortably like this now for an hour.

“I got the whole bed to myself, I got the whole wide bed to myself” (Trevor got to sleep alone for a while during Brendan’s swing time)

Trevor’s game