Week 11 – Day 1

Tuesday starts a new week for the boys, they have been out in the world for 10 weeks now! They are 2wks 2days adjusted age.

Brendan had an appointment back at the children’s hospital today. It is an all day event to get everyone ready and go down there!

We had to adjust the straps to the next level on the car seat for Trevor. He does not disappear in to the car seat anymore.

Brendan is not going to be far behind.

Brendan’s echocardiogram looked very good. They look for a handful of things and he checked out on all of them.
– The hole opened by the septostomy is still nice and large and does not show signs of shrinking. This means there is no turbulence of flow between the two atriums.
– The valves are working properly, there is no backflow from the ventricle in to the atriums.
– The pressures around his band are still looking good and his oxygen saturations are staying where they want them.

He is gaining just what they would expect him to gain, and he is going to get an extra 1/2 an ounce of food every day now. Given the growth rate, it is likely that it will be sometime in March when he has his Glenn procedure. But as long as he is doing well, they will wait as long as possible for him to be as big as possible, so it could well be in to April. They definitely want to wait until after the Glenn to reverse the ostomy so we had better get used to that.

Here’s a few shots of my cute boys in their coordinating blue outfits.

They aren’t always angels. Sometimes they do harmonize their crying in to an entertaining chorus. Usually it is more like this:

Lots of appointments going forward, tomorrow is nothing though. We are all wiped out now today, but there will be bubble baths later. I hear the hot tub calling my name.

One thought on “Week 11 – Day 1

  1. Love the video!!! I know it is hard to listen to, but it is so cute the way Trevor stops for a few seconds as though he is letting Brendan do the work. 🙂
    We’re so happy to hear the positive test results. The pictures are so cute, as they are every day.
    Thank you for always making the blog so much fun, so informative, and also very addictive! We look forward to it every day and it helps to see the babies grow and not feel as though we’re missing a lot.

    Lots of Love from
    Gramma and Grampa

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