It was a much better day today, I am getting better at multitasking. From 6am to 1pm, I was going nonstop and finally had a chance to sit and have something to eat.
Trevor did a lot of sleeping today after a pretty good night of sleeping so now we are keeping him awake as much as possible. Trevor is learning how to smile, and it is really REALLY cute. I bugged him with the camera to try to catch it, but he doesn’t do it often enough.
Brendan had a mixed day. I did everything I could to prevent his episodes of reflux but nothing seemed to make a difference. It is like he throws up but it only makes it out as far as in to the back of his throat and he doesn’t spit up. But then it burns his nasal passages and chokes him so he struggles to breathe for a while. The whole thing causes him lasting discomfort.
The saline mist seems to help rinse his nose and make it hurt less. I think the Zantac may be kicking in so even though he still brings up food, it may burn less.
We go to see the GI doctor at 10:30 tomorrow, I am really hoping he has some other ideas to help Brendan heal and eat. It is ridiculous that he has to deal with yet again another issue to cause him discomfort.
He was 8lb 15oz on the nurse’s scale again today so no growth registered this week. No loss either though.
I managed to give both boys a bath, Trevor spent time under his mobile while Brendan had his turn.
The swing keeps Brendan a bit upright, even if it isn’t swinging. Brendan needs some new snap-side shirts, he is getting too big for these!
This was his best moment of the day, he was comfortable for a few hours.
He is working on his cheeks!
I made the mistake of picking up Brendan while he was comfortable today. I tend to feel bad during the day that Trevor gets held more and has more time for bonding. Holding Brendan just makes him hurt, and does not foster any bond right now. I got him upset and then it took a long time to calm him down. I guess when he is feeling good, I should stop worrying about it.
Brendan did look comfortable in all the pcs you posted. He seems happy just to know you are there and to watch you. Tiffanie you are doing great with both of them and as a mom it is hard not to worry but they have both come a long way obstacles and all …..Call if you need anything v
Tiffanie, every new “development”, Brendan goes through, brings up the “Oh you’ve got to be kidding me! Hasn’t this child been through enough already ?”
response.
While it’s hard reading about it, it has to be all the harder living with it.
With all that Brendan is suffering, he does have one powerfully beautiful thing in his favor, a strong, loving, caring mother. I couldn’t be any more proud of you, for the way you are handling each new crisis.
May you find some comfort, in the knowledge that you are Loved,
Dad