I have been putting off working on the blog tonight because I am not excited about writing about the day. Brendan has just had a miserable night and most of today. He is just so uncomfortable and has just been snowed under with drugs to get him through. Gramma went with me to the hospital and when we arrived he looked like a little storm cloud, just gray and sad.
The doctors decided it was safe enough this long after surgery now to turn him over on his belly on a pillow, and as long as either Gramma or I stood by the bed and kept gently patting him, he was fine like that. But if he was not getting comforted, he was squirming, fussing, or screaming.
He has made a tiny bit of progress, they were able to remove the nitric support and he was down to 50% on oxygen although someone turned him back up to 70% while he was mad today so he was set back on weaning.

I have shown enough frustration with the doctors that they have scheduled a conference on Friday at 2PM so that all the specialists in the same room can go over his condition with us and make a new plan. I don’t have a lot of confidence that they know yet what to do, so hopefully by Friday we will have answers.

Brendan’s beanie baby assistants got a bit gross so they had to be retired to the washing machine and the next team stepped up from the bullpen. Now he has a lizard, a baboon, and a camel.

Brendan also has a new next-door neighbor. It is a cute little girl named Violet that is only 13 days older than him. As rare as a DILV heart is, it was a surprise to find out that she has the same defect and came in to the hospital for her Glenn which was done yesterday. She was an otherwise healthy full term baby and is recovering very well from surgery so far. We told Brendan to pay attention, and let her show him how it is done. Maybe with a girl to impress, he will get his act together.

There have been people on the roof outside of Brendan’s window a lot lately, I wonder what is going on out there. Yesterday it was two guys walking back and forth all day. Today it was one guy working and 7 guys watching.

Trevor is just being Trevor. His biggest trouble to worry about is still just gas pain that comes and goes, otherwise he has really good days and just sleeps so well all night.

He still gets excited for his bath.

I can see why, I need to do some soaking like this too

Mirror baby takes baths too in one of the turtle toys.

All dressed for the day, watching out for his turtle toys.

More new jammies, dinosaurs that read “I wasn’t born yesterday”, plus matching dinosaur burp rag.

Bill just got home from the other hospital visiting his father. He has been in and out as well (mostly in) and needs a new plan too. The whole family needs a break.