Brendan had a good night, but a terrible morning. I was told that at 6am he woke up very agitated and uncomfortable and could not be settled. After his usual meds and an hour of trying to calm him, they decided that he needed something more. The Precedex (sedative) IV drip came back to give him relief, as well as an increase in klonadine. Even when he fell asleep, his heart rate was still very fast.
Some blood work showed elevated white cell count and higher procalcitonin levels – indications that he may still be dealing with an infection. He has been on antibiotics for weeks, but maybe not the right ones? One was added this morning. They sent some cultures again for testing. In 48 hrs, if it all comes back clean, they will discontinue the antibiotics.

I got there today just as he was settling down and he stayed calm and sleepy the whole time I was there. They turned the dex off at 8PM and he has been good for the night nurse so far. Whatever was irritating him seems to have passed for now.

Brendan’s tool box came in today and Bill went to go pick it up. He gets it home and the neighbor helps him carry it in the house. Excited unboxing and…. giant crush dent across the whole top center and the top drawer would not even open. They either crushed it with a forklift in the box or dropped something super heavy on it. Who knows. Back in the truck, back to the store it went. They have ordered a new one that will be in next week.

Trevor was a good boy today. He is definitely showing signs of teething, I keep waiting to see the little teeth starting to poke through. Maybe that is what is getting to Brendan too?

It was a beautiful cool evening as the sun went down today. Trevor and I went and sat out on the patio for his dinnertime bottle. He loved being outside.

The fresh air was too much for him!

Once the toolbox fiasco was done, we took Trevor to see Grandpa Jack. The hospice house is treating him well, he was comfortable and said he’d had a very good turkey dinner. He was thrilled to have Trevor visit. Even though he couldn’t see him well, he could hear him and held him.