I did a crappy job taking pictures today, they really were an afterthought. It was a much better morning keeping Trevor on his routine and going to the hospital around 11am. I met with the home equipment company representative and got a training on the ventilator, the suctions machines, new pulse-oximeter, and apnea monitor. Lots and lots of paperwork to do too, and the list of supplies that will be delivered was 2 pages long.
Brendan is still doing very well. He has his morning angry time, but he just needs company and attention and he gets through it with no problem.
I was so busy today with other people, I didn’t get to spend much awake time with him today, just watched him sleep. I did get plenty of smiles though.
Trevor will be so much happier when these trips to the hospital are done. He gets so overstimulated with all of the people and sounds, he doesn’t eat his bottles well when we are in Brendan’s room. I still am waiting for teeth to pop through any time.
I came home today feeling miserable and I hope I am not getting sick again. I had a severe body ache as if I had a high fever but my temperature was normal. A little ibuprofen helped but I am still not 100%.
Bill and I each have to spend 24hrs in Brendan’s room “nesting in” where we do all of his care with the nurses observing and answering questions. I am really not looking forward to this at all. I did it when he went home last time and I understand why they do it, but caring for him there and at home are still vastly different. I will probably do my nesting Friday-Saturday and then Bill will do his Saturday-Sunday.
Glad things are coming along for the homecoming! Hope your body aches turn out to be nothing ~ I would probably say you are just exhausted. Take care. Sending more positive thoughts and prayers.
PS love Trevor’s karate move!
Good Morning from the East Coast! Catching up on your blogs Tiffanie has been uplifting!! Cannot imagine the range of emotions you and Bill are experiencing!! Actually anticipating Brendan’s homecoming, he being stable enough to do so, the joy of giving up that commute and having him only feet away to reassure him when he’s hurting or scared, and the contolled panic of assuming his care!! Good grief, no wonder your body ached…mine aches for you!! But what wonderful news!!!!! Prayers, so much love, support and many, many hugs for all of you!!! May each day be better than yesterday!!! 🙂
There’s a picture of each one there 🙂 , absolutely nothing “crappy” about that.
Looking at those photos, my mind wandered a bit into the future, and I could see those two boys, up on the Rim, camping with you, jumping with momentary fright, then laughing hysterically at “the Bean Bomb” explosion.
They have a bright future, because of the loving and caring they get from their Mom and Dad.
Wow, such a lot happens so quickly! So great hearing the progress and watching the boys grow. I have faith that soon, Brendan will be catching up with Trevor. Thanks again for keeping up the blog. Hugs to ALL of you.