Happy Friday! Saturday to most who read the blog in the morning. Monday to the big crowd that falls off over the weekend!
Today was about playing
Brendan’s color was better today, as was his mood.
Trevor’s silly level is on the rise, he is feeling a bit more like himself.
Brendan isn’t sure what to do with the chameleon
Oh he lights up and sings!
Honey, I shrunk C3PO. Where could he be?
He’s lounging on the O2D2
We work with Brendan every day on his oral skills. After his Glenn surgery, the cpap mask and the enormous vent pressures he was on made him lose his desire to use his pacifier. Not eating by mouth all this time has suppressed his feeding instinct. It is a huge thing just to see him still willing to bite on his paci. Speech Therapy will start soon to help him not lose the ability to eat.
Brendan finds his mirror baby
Gramma bought the boys each a cute little patio chair!
Bye Bye
Overall, it has been a good day!
Wahoo. My daughter Tammy said you posted already as she is now reading it in Atlanta since I was there the end of May. What a great day two very happy babies looking great.
My daughter in law Ana called and she has been checking the blog as well so she was aware that Brendan is home. It was so great to be able to discuss the progress with them knowing they are following it…
Trevor sure looks like the big boy in his Patio chair!…..v
It’s hard to believe that it is almost 2 weeks ago that I returned to AZ to help prepare for Brendan’s long awaited homecoming. It is truly a joy to see how much he likes being home, surrounded by his own family, in his own bed, with his own things. He has made great progress in many ways, and crinkles his little nose when he smiles big. And who could resist those big eyes and long eyelashes?
Trevor is adorable and has the silliest personality, with a little attitude thrown in, and you just want to squeeze him and never let him go!
One thing I am finding with each day that passes, this blog, while being wonderful in every way, does not tell the real story of what a day is like in the Aylesworth house. Tiffanie works very hard to post the cutest pictures, and report the smallest accomplishments and improvements. It tells a very nice, but not a total story.
What I see, and am a part of when I am here, is very different, and I would like to share some of that with those who follow this blog.
One can imagine how hectic life can be with one baby, and two babies double that; but one baby, and another baby with the special needs that Brendan has makes it ten times greater. I am sure that most parents couldn’t do it.
Brendan needs 17 different medications in 32 doses, every 3 hours day and night. His tracheal tube needs suctioning from every 2 minutes to 2-3 hours if he is sleeping, 24/7. He needs his trach ties changed daily, his tracheal tube changed once a week (pretty scary stuff). His ileostomy has to be emptied, his feeding has to be administered through his feeding tube, which they have to watch constantly, to be sure that it doesn’t get pulled out, or it’s back to the hospital to be put back in. And all of this is the tip of the iceberg.
Tiffanie and Bill do a remarkable job. I am amazed every day at what they go through. They handle it with such care and devotion.
Brendan and Trevor are special little boys, I am a very lucky Gramma. I love them very much.
I am so thankful for my Kayla, Ashley, Caleb, Brendan, and Trevor.
Thanks to all who follow this blog and send all the positive comments, it is appreciated and encourages Tiffanie to continue spending the hours that go into it.
Lots and lots of love to my babies,
Gramma
Cindy I am sure there is a lot more we don’t see. I am amazed how positive the whole family is and I love seeing the pictures. Having said that, should Tiffanie decide to not post a blog I would totally understand it is due to the demands of having twin boys – especially with the challenges Brendan has faced and the ones he has conquered so far. Having one grandson with special needs (autism) I do understand there are many different things no one who has not been could understand. Kudos to the entire family!
And I know I am rambling, but my grandkids just left for a three week trip to Yellowstone for camping and meeting up with DILs family. Oh how I wish we could go too! Enjoy those babies and given them all a hug from me, who considers herself their “adopted” grandma!! (And consider yourself hugged too!!!)