Guess who is still here? It’s Gramma! She should have been on a plane last night, but Trevor whispered in her ear every night while she was rocking him and convinced her to extend her stay until July 1st.
Trevor is going to help with the blog. He had to get the camera ready for the big news.
Brendan has a TOOTH! His first tooth officially made it through the gums and is just a tiny sharp little bit of a tooth. He really enjoyed Gramma clicking on it with her finger. He was proud, I like how he kept looking at the camera! Big brother gets the first tooth, although Trevor is not far behind.
Trevor was overburdened with crabbiness today
Brendan had a great day of playing and sprinted off of the vent for an hour and fifty minutes.
He didn’t let the crabby get him
He had a full service wash today. Bubble bath, ostomy bag, all fresh face tape, trach tube change. He handled it like a superstar and was exhausted.
Because we took out a trach tube, I took some pictures so that you can see what it really looks like. I have had lots of questions about it. This blog is meant to help people understand what Brendan is dealing with so I am more than happy to explain things or answer questions, especially from the kids! No matter how silly it may seem. Bill and I (and Gramma too!) have been immersed in this and it is hard to remember when it wasn’t normal to have a cart full of medical supplies in the living room.
It is just a peg in a hole and the ties keep it in place. This tube part gets changed once a week for a fresh one.
This is the foamy strap that goes around his neck and attaches through those little holes with skinny pieces of velcro. These are disposable and get thrown away every day.
tooth!! Yay!!!! Nice to see Brendan taking his role as “older” brother very seriously. 😀
Thanks for the tutorial on the vent. I,too, was curious but did not want to ask!! Glad gramma is staying a bit longer. Hugs to all!!!
Good Morning from the beastly hot East Coast!! it is so hot (100+), that our internet has been fizzling and Brendan, we cannot see that awesome new tooth!! In fact this is the second attempt to post a note!! So if you are blessed with 2 posts, enjoy!! Good luck today with the tummy doctor Brendan!! And Trevor, nice job convincing Gramma to hang around a bit longer!! Actually, it is just a ploy so Gramma has time to shop for new luggage for her “precious cargo”. You two have grown sooo much!! May all of you continue to find the stamina to keep up the amazing job you are doing!! Brendan and Trevor, you have a wonderful family! Prayers still going, much love and oodles of hugs!! 🙂
Wonderful news so happy about your mom staying to train Trevor in the blog and photography….Loved the pics of the new tooth and the video and well as your new cameraman. Out of town for the weekend but following the blog faithfully with my coffee every morning…
The trach information is amazing and I can better understand the amount of work it is for care of these life saving pieces.
In my heart and prayers daily..v
🙂 ” He didn’t let the crabby get him ” :)- – – Crabby knows 😮 . . . He has to be very careful around Humans with teeth ! 🙂 🙂