Week 38 – Day 7

What a way to wrap up the week. Brendan started with a miserable morning and we spent all day exchanging phone calls with his doctors. After scaring me by saying that they were considering an overnight admission to the ICU, we agreed that the best thing to do for him was to push his feeding tube back to an “ND” which means it goes deep to the duodenum instead of in to his stomach. This will control his reflux and vomiting and hopefully make him feel better. The down side is that an ND tube can only be placed with xray guidance. An NG (stomach) tube can be put down by us at home. If he pulls this out or gags it up, we have to go back to the hospital again for it to be replaced.

He didn’t mind the car ride, although I hate taking him anywhere in this heat.

We promised him again that he wasn’t staying. Here we are with a fresh taped face and new tube, heading for the exit.

He was so worn out when we got home. Having an epic meltdown when someone tries to put tape on your cheeks really wears you out.

He woke up in a good mood!

If his bright eyes and big smile are any indication of how he will do tomorrow, then we will be thrilled.

He has had rapid breathing and elevated heart rate with his throwing up, and that hasn’t entirely stopped yet, but it is better. It really needs to improve over the next few days for the doctors to be happy again.

Trevor spent the day with Gramma. Good thing she wasn’t on a plane.

Eins has been feeling a lot better too. He is moving around well again. Trevor loves his dogs.

Jungle meerkat Trevor pops out of his hole to see if it is time for dinner.

One thought on “Week 38 – Day 7

  1. Hello Bill, Tiff and boys! Brendan looks so much better than he did when first at home, less swollen and better color. YAY! Trevor looks like Mr. Mischief, he looks like he’d be very entertaining (and a handful!) Thinking of you all and as always, hoping for the very best. Love, Meg

Leave a Reply to Meg Cancel reply

Your email address will not be published. Required fields are marked *