Year 2 – Week 18 – Day 7 – Smooth!

Days like today we look forward to with a little bit of dread. A trip to the hospital, all the paperwork, waiting and mess, packing all the supplies and hoping not to forget anything, timing food and meds and naps, anesthesia and risks, procedures and risks, traffic and more. We had it all today but I am so pleased to write about how well it all went!

We all had to get up early today to get ready to hit the road. Brendan was ready and waiting for everyone else.

Bill was able to take the day off so that he could stay home with Trevor. I tried to get everything Trevor-prepped before we left. Just look at this lunch! Chicken cordon bleu casserole with green beans & broccoli, cheese, buttered wheat toast, mandarin oranges and strawberries. All the fuel he could possibly need to wear his daddy out with antics!

Brendan was nervous and worried at first, but when we finally got through all the papers and crap and made it to radiology, he settled down.

He had to sit on my lap and play while we waited.

We finally moved to the last “holding pen” before we met with anesthesia and he went in for his procedure. Brendan was feeling downright silly (no drugs given yet!) and was being a real camera ham.
This is one of my favorite Brendan expressions he does when he is playing with me.

He was a real comedian.

Not only did they make him wear the pink girl-gown, the movie they were playing in the room was Tinkerbell. Brendan forced himself to watch it.

He did plenty of “talking” again today. He is too cute with his little sounds.

Here is a “before” picture of the feeding tube they are going to take out.

This is the piece that is permanantly attached to him, even when his feeding pump is disconnected. It is long and heavy and interferes with clothes, and it takes special syringes to be able to push in medications.

Under all this sloppy waterproof tape is a zip tie that holds the inner tube in place.

The whole thing took about 35 minutes and then he was back in recovery, sleeping and drooling.

He woke up pretty fast and super spoiled baby had to watch his Signing Time videos about the frog with booboos.

Discharged quickly! Woo hooo! This is how we roll with one baby and a pile of equipment in a double stroller.

Home and time for a bath to wash off all the ‘hospital’. Trevor has to quality check the bath water.

And here is the man now with his new and improved feeding port.

This squishy button is all that is attached to him when the feeding pump is disconnected. White port is for stomach, brown port is for jejunum (small intestine) and the blue port is to check the pressure on the balloon that holds the button in place.

This is with the feeding tube clipped in

The rest of the day was just lazy pajama TV time and lots of cuddling. Brendan was drowsy but feeling really good.

And if Brendan didn’t make you smile enough, I leave you with the return of the TrevorCam – bathtub edition.

8 thoughts on “Year 2 – Week 18 – Day 7 – Smooth!

  1. YAY, Brendan!! One more big step forward, and you went through it like a champ! You were so silly at the hospital before your procedure, and you are doing so well with your “talking”. I heard you say “hi”! 🙂
    Trevor, your bath video with Daddy is very funny with your “Jaws” theme playing! Looks like you had a good time, and your lunch looked yummy. I can’t believe you were going to eat all of that, but then I’ve seen you eat your meals!
    You boys both look so adorable in your easy chairs. You deserved the relaxing afternoon you had.
    Good day! What good news and great videos! I am so happy that everything went so well.
    Sending lots of love to you all and hugs all around!
    Gramma XXXX

  2. So happy the procedure went so well and he’s “freed” up to start moving easier. Loved the videos and the noises Brendan is making, how clever he is. I also loved the pitcures of you two, they are adorable. I’m also glad that Trevor didn’t wear Bill out too much.

  3. Glad the procedure went so well!! Both boys look so happy `~~ makes it easy to see they have great parents/grandparents/family/support.

  4. Good for Brendan, he got through the procedure like it was no big deal and he came out of it so quickly. Thanks for the information and pictures on how it all works, very interesting. The poor babyhas been through so much but still has his happy face and his talking is so sweet, love the sound of their sweet voices. Trevor looks like he had a great day with dad, who wouldn’t dad is such a fun guy. The videos of both boys are great. Thanks for all of your hard work.

  5. Yay Brendan! We are so happy that everything went well and that this new feeding port will allow you to be so much more mobile and comfortable!
    I can’t wait for Bath Trevor Cam II: 3-D! Or Bath Trevor Cam IV: This time it’s personal!

  6. Good morning and what great news on your day yesterday!! Whoot Whoot!! I just love those smiling babies, well not so babies anymore. They are growing so fast. Hang in there Tiffanie and Bill. Once again, your teamwork has shown through on how to take care of these little boys. Amazing.

  7. So glad Brendan got the button! I’m sure everyone will like it better. I like seeing how that handsome little guy has grown up so much.

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