Year 2 – Week 20 – Day 1

After being up with Trevor for a while at 1:30am, Brendan’s nurse had to get me at 3:00am because his feeding tube was clogged and the pump kept beeping an error.
After messing with it, we were able to get the pump to push in pedialyte and then added formula a little later. It didn’t last though, the tube kept sticking and it was tough to push in water with a syringe.
As soon as I could, I called the GI doctor and they sent orders over to radiology and told us to get there asap. They all agreed there must be something wrong with the new tube.

Trevor is not allowed in the hospital and we had no help today so Bill had to leave work, pack up Trevor and drive us over to the hospital. He and Trevor then went back home so that he could give Trevor lunch and hopefully put him down for a nap.

Brendan had a good car trip, but he cried as soon as he saw the hospital building! We had to go sit through admitting which is not his favorite place either.

We got to IR and they took him back right away to look at what was happening and decide what to do. Next thing I know, they are wheeling him right back out. They found that the tube to his jejunum was a bit too long and it had pushed back up in to his stomach and created a loop. The loop did have a kink in it and that was causing the jams. That also explains why his stomach was so irritated and why he has felt so bad!
They reduced the tube length and repositioned it very quickly and he was good to go home!
Then we had to wait in the lobby for Bill and Trevor to come back for us!

So of course Trevor fell asleep in the car with all the driving and slept for 15 minutes. When we got home, there was no way that he was going to go down for a nap!
I even walked him around the block and he didn’t fall asleep. The sun was brutal, it is getting really warm here fast!
He was a bit of a crab later, but he did OK all things considered. He discovered he loves the ball now.

I will have to get a better picture, but Trevor likes to “mosey” around with his thumbs hooked in his diaper like it is a giant belt buckle.

Trevor has a new trick today

And some things never change (I was just trying to entertain him so I could cook dinner!)

All around, there was too much hospital today!! Surgeries were all successful so far although there is much recovery ahead. We hope the best for Grampa Dusty and Glenna as they worry about the next steps.

2 thoughts on “Year 2 – Week 20 – Day 1

  1. I’m not surprised about the IR visit, sorry to say. Was that, then, the reason for the excessive gag-/vomiting? Hopefully he gets relief now from all that feeling terrible.

    Trevor’s buckaroo style is waaayyy too adorable!!! (Insert spaghetti western music here… ha!)

  2. ” They found that the tube to his jejunum was a bit too long and it had pushed back up in to his stomach ”
    …….and that, sounds just ‘off the wall’ enough to be the *why !!* 😮

    ” Hopefully he gets relief now from all that feeling terrible. ”
    I’ll second that !!!!!!! 🙂 🙂 🙂 🙂

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