Ever since we got Brendan’s new feeding tube, we have continued to have issues. After the last trip to the hospital, I hoped that they had fixed it but most nights over this last week, we have had issues with the pump detecting a clog and we have had difficulty getting the medicines to go through.
It seemed to only be a problem at night and when he was sitting up in the daytime, we had no problems. Why always trouble at 3am!?
After the issues this morning again, I called the GI doctor and they got us orders to go back AGAIN to the hospital to have the tube checked. They did find a kink again that was worse when he way lying down. So out came the whole button and tube. They put in a new one, the same kind that he had way back in September when they first did the surgery to add the port. (We like going full circle so much!)
This tube is a little larger and a little less soft and flexible so it is not supposed to be able to kink like the other one. The other kind is supposed to be more comfortable but is more prone to bending.
The boys were loafing today while we waited for the order to go ahead and go in.
I had to trust “The Lorax” to keep them occupied so I could make phone calls and get ready.
We got a 1:30PM appointment which was good because it allowed Bill to work the majority of his day (he usually is off at 3PM) and it let me get lunch in Trevor before we left. Brendan and I went in to the hospital and Trevor and Bill stayed in the car and played the whole time.
It was a fairly quick procedure but Brendan was very upset and sweaty when they were done. It is so scary for him!
Even after he fell asleep in the car, his little frown did not go away.
I hoped after lunch that Trevor would sleep in the car because he usually takes his nap at 12:30. NOPE! No nap for Trevor, so he was yawning the whole way home. I made him stay awake until we got there and then put him down (At 3:15!) He slept for 45 minute which was ok because it was so late in the day.
Brendan was much happier to be home!
I tried to take a picture of the new button but he was too busy putting his toes in cups.
The new button is smaller than the last one. I like it better personally, we will see how it lasts.
No more frowns and tears!
The last thing to share tonight is a slap-happy Trevor that loves his dogs! I think Eins is coming to terms with sharing his back yard too!
(cuteness overload alert!)
The video is definitely cuteness overload!! 🙂 🙂 I had to watch it a few times and I had to laugh every time! What a silly boy! He and Eins will be pals when Trevor throws the ball out of the play yard himself!
So glad that Brendan’s procedure went well. Poor Brendan looked so unhappy sleeping in the car, but back to cuteness when he got home! Nice pictures of the new port…and feet in cups!
Thank you for the brightest spot in my day. Sorry it had some rough spots for you.
Love to you all and lots of hugs, too.
Gramma xxxx
OMG Trevor’s laugh is infectious and Eins is so good. Looked like Bill was enjoying himself as well. AND right before all that Brendon’s bright and shinning happy beautiful eyes. What a blessing and the highlight of my day as well. What a beautiful family! v
Sorry to hear about Brendan’ troubles. Once again a trooper. I just love to read about their antics every morning. They are growing just like the weeds in my yard!!!