I don’t know where to start today, there are so many cool and interesting events. Brendan had a fantastic day (both boys did, really). He started with a physical therapy session outside in the play yard and he rocked it with big crawling, kneeling, standing, rolling, and reaching.
Something happened yesterday when we got home from the hospital and we hooked up Brendan’s food pump to his new button. I hooked up the food to the wrong port! So all yesterday, evening, night, morning… he was getting his formula in his stomach instead of his jejunum. Funny thing is, in the close up button picture from yesterday, you can clearly see the label “jejunum” in the middle port and “gastric” on the side where his line is connected.
So, inadvertently Brendan got tested with food in his belly and he has done extra super well so far. Today was one of his best days ever. It takes several days before we will know if he truly is tolerating this, but in the meantime, we will leave it and see how he does. We’ll be talking to his GI nurse tomorrow.
Brendan is enjoying his new found mobility. He is going at things with gusto, you actually have to be extra diligent because he will just launch himself at things now. (Especially at Daddy when he wants to get picked up for flying!) He is signing “more” now quite clearly and using it a lot. I sat down to start the blog and next thing I knew, there was a Brendan trying to crawl up my legs and on to my lap. That is a first!
He had another new first today, he took a bath outside! The weather today was just gorgeous and nobody wanted to come inside!
All that PT and playing and bathing and he was wiped out!! If I only had a hammock, I would have been napping outside too!
Even another first today, Brendan happily played with his OT, even though she brought tickly, stringy, fluffy easter grass.
He kept a pretty steady “disapproval face” with the easter grass around.
And yet he did touch it. He pulled it apart string by string and had it between his toes.
Trevor liked the rattle-carrots she brought too
“Go home to the lawn, easter grass”
Trevor likes to stand on his head now!
I was not dispensing the snacks fast enough
Leave the babies for even a second and they attack the medical equipment.
Brendan is going and going and going even still, he is not ready for bed! I have big plans for Trevor tomorrow and Brendan should have a nice relaxing day with Nurse Jen and no appointments or visitors.
So now Brendan has a hot tub on the patio! It was 28 degrees here, and colder tomorrow for the first day of Spring!
I hope that it works out well with food in Brendan’s tummy! Maybe it will be the beginning of some real progress with the reflux. Very cute pictures of Brendan today.
Silly Trevor, standing on his head! They all seem to like being upside down at some point. I hope Trevor has a very nice day tomorrow with Mommy…you deserve some fun!
Everyday, there are so many new things happening. I’m so glad that you share some of it here.
Love and hugs for another good day.
Gramma
Keeping my fingers crossed for Brendan’s success with food in the tummy ! 🙂
Hope this is a major, positive turning point! GO Brendan !! 🙂 🙂 🙂 🙂
* — “Go home to the lawn, easter grass” —*
Trevor, 🙂 🙂 It’s nice, it’s green, and it doesn’t have to be mowed 😉
I am so happy for all of you. I absolutely love seeing how much he can do. They are both such happy little boys, you are doing a great job. See you soon. Love Lisa
It’s amazing how babies can go along and you think they are not making any gains, then all of a sudden – they decide to surprise you! Brendan and Trevor both have been just full of surprises lately. Let’s make sure that these are more good surprises, boys! Trevor, I’m looking at roverT right now….