Brendan showed improvement today. He was more interested in playing, he crawled all around the room. He laughed at his brother. His numbers are still bad, but this is kind of how it went last time too. A few more days and he should be better. We are already scheduled for the 18month checkup with the pediatrician on Wednesday, and he will be ordering a follow up chest xray to check out a suspicious spot and make sure everything is healing properly.
He still has lots of dripping and drainage and it makes him throw up, especially when he gets up from sleeping. I am not coping with the vomit well, Bill has been a hero helping in that aspect.
No matter what I try to do, he always seems to deliberately barf right down my shirt.
It was Sort and Sanitize day, our game of Inventory Undo with extra cleaning.
Brendan loves his “thumb trap” toy
What you are seeing on the floor is a puddle of stomach bile, formula, and mucus. Brendan managed to open the medicine port on his feeding tube and so the contents of his stomach slowly back up and leak out. He was more than happy to swish his feet and splash in it and spread it around. (hence the sort and sanitize day)
Brendan hides out in the toy box. He tried to climb in all by himself.
After work, Bill did some work outside and cleaned up all the tools and debris on the patio. The boys were highly interested.
They love the Daddy time they get in the evening. Trevor even runs to him and says “Daaa”.
Tomorrow is busy Tuesday with PT, OT and oxygen refill. I am sure they will go easy on Brendan.
So glad Brendan feels a little better! He’s so cute even when he’s sick!
Trevor looks like Spider-Man sticking to the window!! I know he’s on a ledge, but still…:-)
I think the boys need a few more toys! 😉 Sorting all of the parts and pieces must take awhile.
I hope your busy day tomorrow goes well and you are able to get some rest in-between all of the comings and goings of different people.
Have a good night and a better tomorrow. Hopefully you are all on the mend and Bill stays well.
Lots of love,
Gramma
Hope both you and Brendan are feeling better today and continue to do so. Trevors picture standing in the window is really funny, how in the world does he do that without falling? He really is amazing.
Good Afternoon from the East Coast!!! Hopefully, looks like maybe, fingers crossed, that you all are on the mend!!!??? What a siege! Prayers, hugs and love!! PS Give Trevor some windex and he could clean the windows while exploring! 🙂
I always read the blog in the middle of the night when Li’l K is chowing. I use our tablet and it automatically defaults to Uncle Jon’s log-in, so many days go by without me commenting.
SO…it is good to hear that everyone seems to be on the road to recovery, though that road may be longer than any of you would want. I have my fingers crossed that, even if a bit long, it is at least smooth!
K received his package while we were gone. I couldn’t believe that Trevor is TOO BIG for some of those clothes!!! I also realized it was a year ago this week that Uncle Jon and I were there visiting. Wow! We really would love to see the boys again soon, and their cousin would really love to meet them!!
Sending healthy vibes your way! Miss you all!
Love you! ~ Crazy Aunt Schnah