Today started out with a bit of drama!
This is Brendan’s feeding tube on the kitchen counter.
The button is the part that was on his belly, the balloon is the part that was in his stomach that holds the whole thing in place. The long tube goes through his stomach and in to his intestine. Or it did until the food line got caught in the recliner chair. POP! Out comes the whole contraption.
In the past, we would have been crying because placement of this tube has to be done in interventional radiology at the hospital and we would have been packing our bags.
But since Brendan has done super super well with food going to his stomach, we were able to put in a new button at home (one that does not have the length of tube past the balloon).
POP! New button in place and all was well.
We were waiting for the day that we could change this out. The new button is so much better. It is smaller, it can be rotated to be cleaned. The old button was leaky and held open the pyloric valve in his stomach with the long tube. Hooray for accidents with happy endings.
Trevor slept in and missed all the fun. He woke with a little bit of an attitude.
It was 18-month checkup day at the pediatrician’s office. We were in the Dr. Seuss themed room today.
Brendan is feeling slightly better again today. We are slowly making our way back to healthy.
Trevor is filling out the survey about development.
The doctor said that they were both amazing. He says that Brendan’s lungs sound beautiful and clear.
We will get the follow up chest xray on Friday to be sure everything is improving.
18 month stats:
Brendan – 33 inches tall, 25lbs 7oz, 19.5 inch head
Trevor – 34.3 inches tall, 25lbs 2oz, 19 inch head
They didn’t get shots but they got a TB skin test and came home with a bandaid on their arm. Brendan kept trying to shake his off. Trevor just picked his off.
Trevor and I ran to the store because we were almost out of milk. Trevor has these new faces that he makes for me that are quite funny. He has one that is a “yeah, right” look, he has a very angry scowl that he used on the nurse with the needle today. Then he has this one, the “I don’t want to be here” grumpy face.
I have to try to catch the angry face because it is a real award winner. He is all full of attitude lately!
Good evening, after duty crew, from the East Coast! OMG, caught in the recliner!! Thank goodness for happy endings! Whew!! Loved the pictures and the statistics!! The boys are doing really well. Kudos to you!!! Prayers, hugs, love and good night!! 🙂
Great news at the doctor’s office! The boys are getting to be very close to the same size.
Do you have a day totally without some kind of drama? I’m happy to hear that you once again avoided a trip to the hospital. I’ll hope that Brendan’s tummy tolerates the new feeding port.
I know it’s probably not cute when Trevor is giving you an attitude, but the pictures are adorable! 🙂
I’m amazed that with how active Brendan has become, there haven’t been more tubes popped out! He sure gets around!
Wishes for continued improvement with everyone’s health and lots of love and hugs,
Gramma xxxx
Great news from your doctor visit, the boys are progressing at the same rate, amazing. Trevor’s attitude is so typical of a two year old, he is just starting a little early, No is the favorite word for two year olds, get ready for it but they just get cuter and cuter. Enjoy.
Yeah, I’m at Shannon’s, and using a laptop for one of the first times, to log in to this blog. I had a good trip here, and tomorrow, early, I’m off to Aunt Letty’s, hopefully in time to have supper with the family.
Right at this moment Kieran is ” hungry ” and making it well known throughout the house 🙂 🙂 🙂
Shannon, Jon, Kieran and I, went to a local restaurant for dinner, just after I arrived.
Hope to leave here early enough tomorrow to get to Letty’s “on time”.
Looking to get out “the Island” to Copiague, Bridgehampton, Noyac, and Sagaponack, Sunday, – – – or Monday just for old times sake.
I.ll do what I can to keep up with this blog through out the trip.