Year 3 – Week 29 – Day 4

There were a lot of challenges today. Last night, Trevor went to bed perfectly at 8PM and woke up 2.5hrs later with a low grade fever. He must have just felt terrible, because he simply could not lie still and sleep. He was restless, he would cry if I set him down. I gave up at 3am and just climbed into his bed to try to get some sleep. By 6am, we were up for the day.
Today we had all the big meetings about Brendan’s care plan and therapies. We very nearly lost an 8hr nursing shift but they took pity on me and allowed us to keep it one more cycle. We can count on losing it on the next review period, and probably more. I hope that things are a lot different by then.

We started talking about Brendan starting preschool. He is too young to be considered for the session that starts this fall with his October birthday, but this summer we will be meeting with the local school district to discuss his options. The whole idea is so strange and a bit scary!

Trevor seems a bit better tonight, but the lack of sleep really affects him. (Me too!)

Brendan has a new favorite toy ever. He is so attached to Buzz Lightyear. He will carry him around all day, cuddle him, fly him, pretend like he is walking, swing him, tap him, shake hands, etc. I tried to capture the cuteness, but he wouldn’t do the best stuff for the camera!

One thought on “Year 3 – Week 29 – Day 4

  1. I’m sorry to hear that Trevor didn’t feel well last night. Maybe it’s his version of whatever made Brendan junky, and Kieran’s nose runny. I hope he fights off whatever it is quickly and you all get some sleep tonight.
    I’m glad you didn’t lose nursing hours. I hope by the next meeting everything is easier, so you don’t need as much help.
    Brendan is very cute with his friend, Buzz! Funny how he’s been there the whole time, and now he’s really taken by him. Maybe it’s because Toy Story became his new favorite movie.
    It has been pouring rain for hours, and lightening and thundering. Our new sump pump is running non-stop, and Great-Grandma’s basement is leaking water around the edges, not good because we have so much stored there. It’s supposed to rain all night and all day tomorrow. Our street was flooding earlier!
    Lots of love and hugs,
    Gramma xxxx

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