For some reason, the boys want to spend a significant amount of the day playing with Legos.
Today might be a major milestone in Brendan’s journey. We have tried this road before and it didn’t work out. The ventilator is turned off tonight! Maybe it has seen its last usage.
We visited Brendan’s pulmonologist today for his quarterly checkup. She sent us home with some equipment to run our own sleep study on him at home to verify that he is doing well without the vent. So far tonight, his numbers are all-star.
There is still much that is up in the air. Brendan will need a formal sleep study done at the hospital where he will have his trach capped. His pulmonologist, cardiologist, and ENT surgeon have to work together to determine whether Brendan will need to have his tonsils and adenoids removed. A bronchoscopy might be in the near future.
We have to take it all one day at a time and use the data we gather to help us determine the next step. In the end, we are hoping that this will lead to trach removal before the summer is gone.
Go, Brendan, Go!
Yay, Brendan!! Gramma is so happy to hear how well your doctor’s appt. went today! Big changes are coming!
I hope everything goes well, and the ventilator can go away for good, along with the trach.
I have a feeling that Brendan and Trevor had help with the Legos today! They sure were concentrating hard on their projects.
Hopefully this is the beginning of lots more good news and things going smoothly.
Lots and lots of love,
Gramma 🙂 🙂
Good morning from the, yup, more snow on the way East Coast!! I just re-read this last post!! Way to go Brendan!! Fingers crossed that all studies go smoothly and Brendan can move forward with his journey!! 🙂 Lego’s are timeless…looks like the boys had a little adult intervention?? Looking forward to your next post!! Prayers, hugs and love!!! 🙂
🙂 🙂 Yup, Letty, more snow – – – and unless the nature of the system changes there will be some sleet and freezing rain coming along with it. My windows are all iced over.
There was also, this morning, a bright spot – – – YAY Brendan !! hope all goes well and you are finally arrived at the “last days” of machines and the trach !!
The “Light at the end of the tunnel” isn’t always “a train”. It can sometimes be, the light of a new day, and the joy of going forward to better days.
Some day you will be able to read this blog, and know, truly, how many people’s prayers and thoughts, and caring for you there was.
Trevor, Some day you will be able to read this blog, and know just how important you were, as a brother and closest friend, to your brother’s survival.
Tiffanie, Bill, until all this comes to be, my thoughts and prayers go with you. Your boys will someday realize just how special their parents were, and are.
I am praying for little B to do well and keep moving forward the way that he has. It is so cute to see them sitting together with the legos. What a couple of sweeties you have there Tiffanie…
Go Li’l B!