Year 4 – Week 36 – Day 3

Happy Day – Sad Day

The good news is that we have an official date: July 28th!
We have to check in to the hospital at 5:30am for procedures to be done at 7:30am. It is a bronchoscopy with removal of granulation, upper GI scope, and an intestinal biopsy.
He will get his trach removed after he is fully recovered from anesthesia and then he will sleep the night in the hospital. If all goes well, he will come home on the 29th with no trach!
We are excited and nervous!

The other good news is that Brendan’s motility study results came in “totally normal”.

The bad news has a couple layers. Brendan seems to have succumbed just tonight to the cold that Bill has been fighting. His symptoms are minor but he is definitely sick.
Even worse, it looks like we are not done with the MRSA.
Brendan’s nose is flaring up again and Trevor has another spot on his rear.
We visited the pediatrician this afternoon and both boys are on another longer and stronger round of the antibiotic and the whole family is doing the nasal swabs.
We absolutely must get rid of this bug before the 28th!

We went to Walgreens to fill all of the prescriptions and ran in to Iron Man. 😉 😀 🙂

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5 thoughts on “Year 4 – Week 36 – Day 3

  1. I hope Ironman can fight off that nasty bacteria and cold so he is 100% well for the 28th and his procedures. How exciting that he could be trach-free in only 4 weeks!! 🙂 🙂
    Get well soon, Brendan and Trevor! Stay well, Mommy and Daddy!
    Love and hugs to all!
    Gramma xoxoxoxo

  2. That pesky MRSA!!! Iron Man to the rescue!

    We are so excited for all of you that an end date is in sight! I will hope that those pesky bugs and viruses can be beat in time. Thankfully, you have a month to get rid of them and great doctors to help with that. Battle hard there Iron Man!

  3. It never seems to fail…..whenever there is good news, somehow there’s bad news lurking in the shadows.
    Iron Man isn’t afraid of shadows…..kick that bad news into the middle of last month, and let the good news reign supreme 😉 🙂 🙂
    I’ll keep a prayer going that “Iron Man” wins, and everything is good, and goes well.

  4. Good morning from the Lake House!! Whoa Nellie…lots of catching up !! That MRSA is a tenacious little bugger! Iron Man…. blast that bugger outta here!!! Hoping Brendan’s cold is short term and easily tolerated!! Bill, hoping you are healed! Brendan has a fully packed, exciting, eventful July!! So happy to hear that his motility studies are in the normal range!!!! His next steps will be so much easier to implement. I thought that construction caused a dust storm here…..nope, your dust storms are far more impressive!! 🙂 Loved the, trying to find a cooler place, pictures!! The boys with Bill is a terrific photo!! Sending many healing prayers, love and hugs!!! 🙂

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