Year 5 – Week 40 – Day 1

The summer is going by quickly. Brendan had a feeding evaluation done at the hospital with a large team of specialists. He did a great job with so many people in the room. (Dietician, OT, GI Doctor, Feeding Therapists, etc) They wanted to see if he might qualify for this intensive feeding program that they do on campus. When he starts, it would be a 5 day a week, 2hr each session to work on his aversions and eating difficulties.

They all agree that he could benefit from the program, but they think it would be overwhelming to jump right in. For the next three months, he is going to go once a week while they gather more data on him and see how he does.

Brendan’s heart buddy, Violet, was his neighbor in the hospital when they both had their Glenn operations. On Monday, Violet had her Fontan. We are watching with concern and interest as she goes through recovery. She is doing great so far, but it is such a painful process to heal. We wish Violet and her whole family the best! It could be us next year.

Escaping the heat means heading to elevation for some hiking and exploring. We managed to get from 110 degrees to only 85-90. It was still pretty hot! But it was beautiful.
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They found pockets of shady sand to dig dig dig.
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Cool little bridge
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Picnic lunch
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I have terrible Mommy-guilt because Trevor’s play shoes gave both his heals big ugly blisters. 🙁 He was complaining about being tired of walking, but I thought he was just hot.

I had a little mini-vacation trip to Dallas to see Shannon and Malcolm while they were in town for her work. I got to hang out at the hotel with the cutest little dude while Shannon went to meetings. Lucky me!

We explored the city a little (it was 100 degrees here too! No fair!)
This is the bridge over the Trinity “River”
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Shannon and Malcolm on the pedestrian bridge. We were too hot to walk all the way to the splash pads on the bridge!
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Malcolm says, “Seriously, I am in a broiler here.”
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My hand-held, sideways-through-a-window-distorted night view of the city from our hotel room.
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I took some pictures with my tablet too, but it has a dead battery, I will try to post them tomorrow.

Everyone is healthy right now. School is going to be starting soon!