Another month… Where does the time go? I have shared some of this on Facebook already.

April 26th – lunch at Trevor’s favorite restaurant – IKEA. We don’t go anywhere near enough for Trevor’s liking.

April 28th – We got a quick visit from the boys’ Uncle Kevin. After thoroughly wearing him out with a giant nerf war, we took him to Trevor’s second favorite restaurant – Old Spaghetti Factory. After dinner, Trevor still had tons of energy.

April 29th was Brendan’s favorite HopeKids event. The owl picnic! It is a nice little gathering at a park with bouncy houses and pizza and meeting new friends. But there are owls! This year, they brought a little burrowing owl in a fancy house. His name is “Digger”.

Brendan’s buddy from last year, the owl named “Robert”.

Brendan made a mask at the crafting table so that he could talk to Robert.

May 3rd – Random photo from one of our numerous Aquarium trips! We love Wednesdays, the place is empty!

May 5th – We had a visit with the heart surgeon. Brendan’s surgeon that did his other heart procedures has left the hospital so we met the new one. We were really thrown for a loop when he told us that he wanted to wait for the trach to come out first before he would do surgery. We thought we would be getting a surgery date in a matter of days. Now it seems we are caught in a loop. It left us reeling.

May 6th and 7th – Time to get some business done. We rented a little excavator for removing the rest of the big tree from the yard. I hate to see such a nice tree come down, but it was way too big for where it was planted and it was doing a lot of damage. (And bothering the neighbors!)

The roots on this tree were massive

Giant crater!

May 10th – Random photo of Brendan blow drying himself at the Aquarium

May 13th – Random photo of Brendan finding random pieces of clothing and dressing up “like a ninja”.

May 22nd
This was the appointment with Brendan’s ENT. We had a very difficult decision to make about the steps for Brendan. We don’t want to keep losing time but we also want to not put Brendan through any unnecessary risks. In the end, we let Brendan make the choice. He was very eager today to come home without a trach. He insisted. It happened.

“Who let the owls out?” is Brendan’s newest song that he sings all the time. He modded it for today’s special event.

Brendan has been sleeping with perfect breathing for almost 3hrs now. You had better believe I will be awake most of the night listening to him breathe. I am excited for him, so proud, and undeniably nervous. We hope that he took out his last trach tube ever. Brendan says, “Gone for good!!!!”