It was a mixed day today. Brendan continued his happy streak well in to the afternoon with his numbers looking fabulous. But then there was a sudden change, he was coughing and struggling again and I can’t pinpoint exactly what happened. It might have been his 3PM meds, it might have been my forgetting to turn his humidifier back on for the ventilator after his bath (which turned in to a much longer event than planned with an ostomy change and trach ties).

He fought and cried and alarmed for a few hours and then finally fell asleep about an hour ago, although he is sleeping restlessly. I hope whatever it is passes quickly and he gets back to the wonderful Brendan that we got to see this morning. Trevor had a mixed day too. He had some super cute happy fun time and he has had some serious fits of shouting and crying. Gramma has had her hands full trying to keep him happy and fed.

We are all pretty wiped out right now. We do not have a night nurse tonight so Bill and I will be splitting the night in half staying up to watch Brendan. Bill is in bed now while I take the first shift!

I have only the cutest pictures to share from today. Some of the ones from this morning seem like they were days ago! It was a long afternoon!!

Trevor seems to enjoy his tummy time.

Brendan thought it was something to try too. He did a great job all things considered.

He lifted his head a lot more than I expected!

Physical therapist Trevor is helping with CPT.

See, Brendan does enjoy his bath time.

After all that stimulation, he needed a rest

He was still feeling happy here, looking too cute.

He really is starting to like his toys much better too. He was so cute getting excited and waving his arms at Jacque the Peacock

Poor Trevor still bites everything, and was happy tonight to eat an ice cube in a mesh strainer bag.