It was another hectic day, but at least there were no hospitals involved. After breakfast, we picked out another train set. We set up Radiator Springs.

And then it was time to crash the tracks

Trevor simply would not nap today. He was in his crib for an hour and a half playing, jumping, dancing, etc. Brendan tried to nap, but within 15min of being put in his crib, chaos broke loose and he woke up. So we had two exhausted boys tonight.

It was oxygen refill day. He always comes during naptime.
Trevor missed the garbage truck going down our side of the street, so he went out to see the oxygen truck instead.

Getting the tanks refilled is loud.

The garbage truck finally rolled down the other side. Trevor was happy to see it, it has been weeks. And he gets a two-truck-Tuesday bonus.

It was time for the boys to say goodbye to Granddaddy. Trevor was ready to take him to the airport.

Trevor does not like to be held still for a photo

We came home and sorted some more train pieces. The pile doesn’t seem to get much smaller.!

Brendan has neither improved or declined as far as his breathing, oxygen use and numbers go. He was very active and playful and smiley though. We are hoping he can beat this bug soon.

We got up this morning thinking that we would just be visiting the pediatrician. I called as soon as they opened and they were able to get us in at 9:40am.
The doc was very sad to see Brendan working so hard to breathe and needing so much oxygen. He really didn’t like how his lungs sounded either and expressed concern about pneumonia.

He asked the nurses in the office to do a breathing treatment so he could listen again and see how much it helped. We had to improvise a contraption to get him his mist treatment while he was wearing an HME for travel.

Even though the breathing treatments helped some, the doc still was uncomfortable with Brendan’s breathing retractions and lower left lobe. In order to rule out pneumonia and play it safe, he asked us to take Brendan to the emergency room for his chest xrays. If the xray came back ugly, they would do IV steroids and bloodwork and so on and so on…

So we popped back to the house in order to pick up some food for Trevor and supplies for Brendan in case he was admitted and headed to the hospital.

Our doc had called ahead with orders and specifically asked that they try to take it easy on Brendan. It was definitely a better visit this time, far less people tormenting him all at once. He was exhausted by the time they got him all hooked up.

We made the epic journey across the two big buildings to go to imaging for xrays. The doctors came back and said that his chest looked good. No signs of pneumonia. They did Brendan’s favorite nasal swabs and trach cultures so in a few days, they will call me with results and we will hopefully know what bug is bugging him.
Brendan says for all they do to him, the least he can do it leave some teeth marks on their equipment.

They got consult from Brendan’s pulmonology team and his cardiologist stopped by to see him and check him over. Then they agreed that as long as we were comfortable with caring for him at home that they had no need to admit him. He just needs to beat this bug once and for all.

We left the house at 9:20am and Brendan and I got home at 5:30pm. (Bill and Granddaddy took Trevor home for his nap)
I did not feel like cooking.

It is good to have the house back to “normal”

I will never take for granted two boys at home asleep in their own beds.

We got a mini dust storm and some rain with big booming thunder. Both boys handled the noise very well and are sound asleep.

It was another long day, mixed with fun and tantrums. Brendan is not making any progress on his illness. He is fairly active and wants to crawl and play and do everything he normally does, but his sats are low and he is still on 5L of oxygen. We are going to try to get him in to see his pediatrician in the morning to make sure that he is not brewing a secondary infection like in his ears again.

Bill and Granddaddy woke up super early this morning to go do some shooting and then they did some sightseeing at the mines. I tried to keep Brendan relaxing and Trevor occupied.
I initially wanted to have a “no sitting/climbing on the train table” rule, but all that was shot when there is one of me and two of them. Besides, they played so nicely together with the trains that way. They really enjoyed themselves.
I watched with an eagle eye for signs of Trevor hitting and Brendan biting and stopped it before it had a chance to happen. I wasn’t always successful but things were better today. I am just wiped out.

They let the train go around and around so many times, but the temptation to pull everything apart finally got the best of them

I pulled out a few more pieces and made a second giant loop on the floor so each boy could have his own set. I barely made a dent in the pile of pieces we have to work with.

Brendanzilla strikes the bridge

All through the day, if we had a spare moment we went in to the soon-to-be-playroom room and took things out of bins and put it into sorted piles. I printed the parts lists for the big sets that I could identify. It is a deep pile!

I have to say, this has been a lot more exciting that just buying a new playset. It is fun to sort and search and discover what all we got. We pulled out two complete large sets so far, a Pixar Cars Grand Prix and the Grand Central Station. Once we had all the parts, we took them outside to wash them up. Trevor loves to have that job.

Brendan could not bear for everyone else to be outside without him. He pitched a fit until he could come play in the hose too.

Poor Brendan just wants to play, he really should be taking it easy. Trevor had a rough night and was up several times crying, but today he seemed to be back to Trevor-spazz.

Brendan finished the freshly washed Grand Central Station kit. It is only missing two trivial pieces, they won’t affect the functionality.

We did have some fun today. Bill has already had to take apart several of the engines to clean and tune them to work or work better. He fixed a non-functional Tow Mater and is looking for spare parts for some other cars.

All of that is under a shadow as we wait for Brendan’s health to return. I just hate not knowing what we could be doing to help him.