Brendan did a great job at the doctor’s office today. He played “shake the oxygen tube” while we waited.

He got silly

His pulmonologist thought he looked great and is happy with his recovery. We have to keep working on Brendan now to wear his trach cap. He has to wear the cap all day long (12hrs) before he can have his next sleep study. Because of his illnesses, we are now looking at an earliest decannulation in the spring. We knew the original goal was very aggressive, but we were hopeful. The time will pass quickly.

When we got home, Trevor was pretty anxious. (He did have a busy morning staying home with Bill!) He absolutely hates to hear Brendan crying when he can actually make noise. (To be fair, it is a very loud harsh cry) If Brendan cries, Trevor runs, throws himself down, hits his head on things and cries.
I decided to take Trevor to lunch to help him get away while Brendan got used to wearing his PMV for the day.
We like this burger joint because it is loud and family friendly.

He says, “Where’s the food!?”

He pushed jelly packets around like a train while we waited. (This was his own doing, I didn’t show him!)

Tater tots, fries, chunks of mushroom-swiss burger. How can you go wrong?

For a little extra, you can upgrade the kids meal drink to a freshly made real milk shake. I got Trevor a strawberry one.

Guess what…he liked it!

I was very impressed with his behavior in the restaurant. He faced out a window that looked out onto a busy street so he pointed out big trucks going by. He loved people watching. He ate well, had his shake and stayed fairly clean too. It was nice to take him for a lunch.

Brendan went down for his nap just before noon and stood up in his crib 25 minutes later with a smile. So then at 5:30p, we were struggling to keep him awake. I got him through the tub and trach care and managed to keep him up until just after 7:00p. He is usually a 9:15p kind of baby. We will see what this means for the night, it is Bill’s cot night.

While I did Brendan’s stuff a little out of order, it meant Daddy had to finish bathing Trevor. Then he got to do the “wrap-a-Trevor-up-in-a-towel” game and cuddle for a while.

We’ve been getting the house ready for company but there is a lot to do tomorrow. I hope the boys grant us a good night of sleep!

It’s Bill’s birthday today and he got to sleep in until 7:30am. That’s like sleeping half the day away on his normal schedule!
After breakfast, Trevor got busy right away baking a nice fresh carrot cake.

He even did his own dishes when he was done baking!

All the talk of cake and batter and baking was too much, Brendan tried to make an escape

We talked him into coming back in to play with cars

Both boys begged and begged to go outside today. Trevor spent a good amount of time in “Gramma’s House” getting it ready for company. He sat out and waited and waited for the recycle truck and it just didn’t come. Tuesday morning it tried to do a sneak pick up and came by at 9:15a instead of its usual 11:45a. Today we waited until 12:30p and gave up and had to go in for naptime. It was kind enough to wait until 3:30p this afternoon so that Trevor was up and ready to see it go by!

Singing Happy Birthday, no candles

Trevor quite liked the cake he made

Brendan says, “Are you kidding me with this? Cake?”

We have tons of cake left, I wish we could cyber-send it to all our friends and family. Tomorrow, Brendan goes to see the pulmonologist for his routine visit plus follow up on his hospitalization. We turned him down to 2L of oxygen today, hopefully he can stay there and keep moving in the right direction. He still isn’t totally better from this illness. I am interested to hear what the doctor has to say.
Bill has the day off so he and Trevor can stay home and play!

It’s a quick post full of pictures for tonight.

Trevor and I ran to Sam’s Club for dogfood and diapers. We had to get hotdogs and icees too. The frozen coke was not ready so we had to settle for blue raspberry.

Trevor LOVED IT

I told him he had to share with Mommy

A lady in the store told me that Trevor was the most handsome little guy she had ever seen

It is difficult to look dignified in a banana-striped one-piece romper with a big monkey on the side

Brendan did an OK job with therapy today and is just chugging along, not much better, not any worse. He pretended to be uninterested in the stack of watermelon chunks.

He couldn’t resist the stack, even though it was food

Trevor ate about 27lbs of watermelon for dinner, and some honey BBq chicken.

Brendan settles for some water in his aquapod

He will drink and drink water, just nothing else!

Here’s a dose of evening silliness

Only three days until cousin crazy week!