Brendan had his cardiology appointment this morning so his nurse and I got both boys all packed up for the drive to the hospital. I don’t know whether it is nerves or motion sickness, but Brendan threw up in the car again.

We travel a little lighter than we used to

Brendan was getting worried

We sat in the lobby for 45 minutes. The boys did exceptionally well all things considered. Brendan just put his feet up and waited.

Brendan was not real happy about getting an echo, but he did a very good job holding still. He just kept trying to grab the tech’s hand and move the camera himself. Then we had more waiting.

Brendan had an EKG and did a good job for that too. He just played his stacking game. Then more waiting.

I tried to keep Trevor occupied with snacks and he played with an otoscope while we waited. The doctor finally came in and gave us big happy thumbs up. He said Brendan’s heart is doing really well. No problems and no changes.

We tried to make sure the boys didn’t nap in the car on the way home. It was almost 1PM when we got home and I got a little more food in Trevor and they both went to sleep. An oxygen tank refill came and went and both boys slept three hours! They probably won’t want to go to bed tonight now!

Trevor took this picture of Brendan

Brendan wanted to play with the camera too. This is is arm waving “I want that” act. He waves his hands and reaches out and makes a little sound. It he doesn’t get what he wants, he makes little goose honks and starts to cry.

I am ultra tired. Travelling with these kids takes it out of me! Then, the phone rings. They have a cancellation in the sleep lab and they can get Brendan in for his delayed sleep study TOMORROW NIGHT! eek! If he doesn’t come in tomorrow, then they can’t fit him in for a month, so we have to jump on this opportunity! Hopefully this will mean bye bye ventilator once and for all!!

Crikey! We worked hard today and I am exhausted!

The boys and I made it a sort and clean day this morning because it helps me to keep them busy.

The boys had their moments of sweet play and screaming fights. And arguments over who sat in the toybox.

They always make up eventually

Brendan is getting in too!

This piano has been sitting up on a shelf with a broken switch. I fixed it today and the toy became the subject of combat for hours.

They made up again. Trevor offers Brendan a drink of his juice. He tried to feed him a goldfish cracker too. I think he is doing more for Brendan than his therapist!

I got Brendan interested in some sliced black olives at dinnertime.

I watched him secretly.

Lick! I think he liked them!

“Oh no! This is going on the blog!”

Trevor was licking his dinner too

He was having a real treat and enjoying every minute!

Brendan really enjoys chewing on the the little blue trach guard. In an attempt to pull it off, he ended up pulling his trach out. He just sat there singing and smiling. I think he really enjoys it being out of his airway. We would love to see it gone too!!

Besides doing a ton of cleaning in the toy area, we cleaned and sorted and purged junk and tried to maximize garbage can usage for pickup tomorrow. It feels good to be making progress on this.
We also got some new cellular shades for in the living room. The old wood blinds were from when we had no covered patio on the house and we needed to stop the hot sun from coming in. The living room was dark like a cave all the time to stay cool.
Since then, the patio cover was finished and we replaced the windows with high rated dual pane ones. Now we can let some of the nice natural light back in! The new blinds are the two stage kind that have the light diffusing and the blackouts. Bill did a lot of work to get the old stuff cleared out and the new blinds hung up.

There was a lot going on today and a lot of stuff that I had to try to keep the boys out of. When there are two babies relentlessly trying to get at something dangerous, one person trying to hold them back is about as futile as trying to stop a river running down hill with a spatula. They make me crazy!

We accomplished a lot today though. It feels good to be sore and tired for a good reason!

It was another scorcher today. We went out before 8am to get our grocery shopping done and it was already 100 degrees. I called for a fireman rescue but he was too busy hanging out in the freezer section being a crab!

As soon as we got groceries put away, I took Trevor for a swim. Either the sun was a lot worse than I expected (at 9:30am!) and my sunscreen application really was terrible, or Trevor had a reaction to the sunscreen. His little cheeks have been splotchy red and bumpy all day. Poor kid!
He did have a good time swimming, the water was 89 degrees!

Rough morning!

He also got to see Maggie-Moo

Brendan was busy at home seeing how he could get in to trouble

And he worked on his naughty faces

I would say that I put Trevor in time out, but someone would turn me in for child abuse. He totally took out all the shelves and tots and got in to the cabinet all by himself, and he thought it was hilarious.

How much is that Trevor in the window?

Brendan came to play too, he’s trying to figure out how he can get in

Trevor teaches him other trouble techniques

The boys each have a new pillow for their bed tonight. Trevor was beyond excited about the pillow, especially since his has little frogs on it. He rolled around with it for 20 minutes at bedtime tonight and finally fell asleep with his feet up on his fish.

Brendan is still up, refusing to sleep!