Both boys are on the mend still today, and BOY OH BOY was Trevor an ultra-crabtastic grump-opatomus. He was super quick to tantrum.

He still could be adorable too. He was playing hide and seek with Gramma outside, counting.

“Ready or not, here I come!”

“That’s right, I am going to swing!” He did swing and loved it.

Here’s a video montage of some of the day’s silliness.

It is wonderful to have Gramma here with extra hands, although at some moments I still feel like with three adults and two babies, the babies are still winning! I was able to do a HUGE amount of work on the old office room this afternoon. I have hoarded too much stuff and got rid of bags and bags of garbage. I am very excited to rein in all the mess and move only good stuff to the new room. The playroom is not so far away!

After dinner bath sillies:

Trevor saw that Brendan got in after he got out and he decided he wanted back in

While I was cleaning, I found the cube flop toy and gave it back to Trevor. We have had it on the shelf for a long time. He LOVED it and kept climbing through it.

Every day, we hope that we all get healthier and then STAY healthy for more than a few weeks this time.

It was very good to sleep in my own bed and know that Brendan was in the next room. He is doing well and recovering. Bill was still feeling extra miserable and I made him see the doctor today. He is now on a z-pak for his sinus infection.
Trevor woke up with thick green goo glooping from his nose so we called the pediatrician and they said they could see him in 20 minutes. We flew out the door and got him straight over there.
He has a little sinus infection too and started taking his first ever bubble gum flavored amoxicillin. It doesn’t seem to have changed much since I used to take it as a kid. Other than his poor sinuses, the doctor said careful someone doesn’t trip over his giant pouty lip.

Brendan was not really himself today. His little face is puffy and flushed because of the steroid he is taking. He just seems a little groggy and distant at times, but he is way more active than he has been all week.

I broke out a play rug I bought for the new playroom to see if the boys would like it.

Trevor being sick doesn’t get him out of doing his chores! Good thing he was feeling better!

Just because he looks so cute doesn’t mean he didn’t throw some colossal fits of rolling and crying and flopping. I will take a video of one of those fits one day.

We made a first attempt to get a picture of Gramma and the boys today. They were not interested in cooperating!

Brendan is still unsure with all the changes and new people and recent hospital stay. Gramma promised him that she wasn’t another therapist and he raised an eyebrow at her with a “that’s what they all say” attitude. He is slowly letting his guard down.

Tonight before bed, the boys got some silly play time. They had to watch the video of their cousin Caleb saying “Crazzzyy” about 27 times. They still love it.

Brendan is still on 4L of O2 with his vent, but he is keeping his numbers steady. There was not a single vomit today! He just had his last dose of the steroid so maybe tomorrow he will start to feel more like himself!

Brendan is HOME!!!!

We were not sure this morning if he was going to be ready. Bill slept at the hospital and Trevor and I headed over right after breakfast. We planned to just trade off and hope that Brendan would be ready to go later in the evening. I didn’t even pack any snacks or supplies for Trevor because he was going to go right home with Bill. Then the decision was made to discharge Brendan, so Bill and Trevor waited since they had the car. Nurse Jennifer showed up to visit and help out with the packing and prepping and transporting (and cuddling and playing!)

We didn’t realize it would take hours to get the official papers and ok to go. Poor Trevor was going insane, he just wanted to run and play and explore and we wouldn’t let him touch and tried to keep him reined in. He was not allowed in the playroom because he was too recently sick. A group of volunteers came by and passed out some stuffed animals which was a big help. Trevor took his new toy for a walk.

We were there well past Trevor’s normal lunch time. I had to get some food for him. He got to try his first fried mozzarella stick.

We got home around 1pm and I am so glad that Trevor took a nice long nap, even after he fell asleep in the car. Brendan seemed tired in the car but when we got home, he was NOT going to nap. He was so happy to be home!! (that and I think his steroid meds make him a little hyper) He had to cruise around the entire living room and play with everything, like he was saying hi to all of his toys he missed. He was a new baby, much more relaxed at home!
Bill and I tried to get the house in order, it had kind of been neglected. We got the boys through evening routine and then Trevor and I hopped in the car to go to the airport!

Gramma arrived safely and we brought her home to the chaos. I didn’t take any more pictures today, I was just too busy and too tired trying to get everything done. Brendan has a fresh bed, all new fresh tubes, a new trach, new filters, new everything. All clean! And he loved his bubble bath, he made up for missing a few days by soaking for a long time.

We are hoping to all get some good sleep now that there are no flytraps involved. Brendan has a nurse that will actually be at his bed and watch over him tonight so we don’t have to worry about him. Tomorrow will be a much better day!