Tuesdays are tiring. Lots of people coming and going always wear me out. After a decent PT this morning, Trevor was frustrated and cranky so I just threw him in the car and took him for a ride. We went by the grocery store and saw the fire engine out front again so we stopped to see it.
It was perfect timing today because all the firemen were there and they were all very excited to talk to Trevor. I asked if I could take his picture on the truck and they went all out, getting him his own hat, giving him a radio and then letting him have the fire hose.
He was a little nervous, especially with all the men trying to talk to him at once. What a special outing that happened accidentally! I only had my camera phone on me.

Back at home, Brendan was ready for a little adventure too. He was blasting up and down the hall and bringing his little car along behind him.

Trevor says, “Follow me”

Brendan jumped to his new oxygen base station and the boys played in their bedroom for a while.

I washed each and every one of the blocks that we picked up with the cube yesterday. We have just a few now!

There is more than a truckload

Dump!

Trevor was playing trucks and sandbox outside this afternoon. He has figured out how to open the lid on the sandbox, so it was time to clean it up for the move to the front patio.

Trevor is going to help sweep the sand away

Something else got swept away

I put all of the sand (only one bag) in to a bucket for the move. Trevor just loves the box itself so I put in a half gallon of warm water and just let him play with it. With the sand cleaned up, even Brendan wanted in on it.

Trevor thinks Brendan could use a drink

These weeks are flying by. We are almost half way through year two already, it is hard to believe. Brendan is even better still today, we are just going to keep marching forward!

I know it is April Fool’s Day but I don’t have any good gags or jokes, it was just another busy and unusual day.

Because I needed more stress, Trevor has now figured out that he can get on the rocking chair and gets twisted in to these crazy pretzels trying to get down through the arm hole. He likes to rock like crazy and jump.

His ability to open containers has been useful too

Brendan picked up a puff off the ground and put it in his mouth

And he pulled it right back out

This is where the day gets interesting. About a week ago, I had contacted a person with an ad on craigslist selling about $200 worth of Peek-A-Block toys for $30. A few back and forth emails all week about where to meet up and we finally found a time and place today. We met at her mother’s house which just happens to be about 1/4 mile from Grandpa Jack’s old house in the same development. Weird!
I took Trevor with me and we met her and her two kids and picked up so much fun stuff for such a steal. A little friendly chatting about kids and the twins led to her revealing that her adorable six year old son was also a single ventricle heart defect survivor. His heart problem is different than Brendan’s but so similar in that he only had a functional left ventricle. He has had the same open heart surgeries that Brendan has had/will have.
What a strange coincidence!

One of the things we picked up was this “Incredi-cube” which is like the mothership of the Peek-A-Block world. There is a selection of interactive things to do with the blocks including a blinking and singing turntable on top. The boys went insane on it, laughing and sweeping blocks around. All three of the boys were having a great time!

By the time I got the camera, the two little boys had settled and were playing so nicely together.

Brendan was trying to kiss his reflection

And to top off a crazy day, Brendan pulls out a new trick. YAY Brendan!

Brendan is feeling better although I would say he is not quite back to himself. Hopefully another day or two and he will be fully adjusted to being off the vent and he can move forward with his speaking valve.

When I looked at the clock and it was 7PM and time to put Trevor to bed, I could hardly believe it. We did so much today that the day just flew by!

Trevor and I started the day early with the rest of our grocery shopping. There was a fire engine in front of the store that had Trevor awe struck. We had to walk over and look at it. The firemen were all inside the store so we didn’t get to meet anybody.

When I got home, Bill dashed off for a bunch of errands and I got the boys through lunch and put down for naps. I forgot how much Trevor loves tuna salad. I haven’t made it for him in a while. He is getting better at eating out of bowls and not just throwing them, doesn’t he just look like a pro.

Neither of the boys were feeling like themselves today. Brendan has had his sats hanging a bit lower and needed more suctioning. His body has some big adjustments to make and he is doing so well. I hope he bounces back quickly. Trevor has been cranky and rubbing his face like he has more teeth coming in.

After nap time, we decided to go to the toy store to spend the money the boys got in their Easter cards. Thanks Aunt Letty and Uncle Rich! Trevor picked out something new, but he didn’t quite stay within his budget.

Brendan has to come out to see what all the commotion is about.

Brendan is showing off his new food truck.

So the feeding pump sits right in the bottom, the bag of formula hangs in black cooler bag. The black and white strap is normally belted around Brendan’s waist and it is a little bit shorter than the feeding line. When he crawls away, he can drag his little truck instead of reaching the end of the line and having it pull at his tummy. He just got it yesterday and it has already been such a help! Thanks so much to our friend Tim who engineered this little contraption.

Now both boys are ready to help Daddy

Trevor is going to put it together

Trevor isn’t even sure what it is for yet, he just knows that it is new and it is cool! Brendan is just playing with one of the guys that came with it.

Then Bill pours in a bag of sand.

Trevor LOVED the sand and dirt at the park so I knew he would be all over this.

I made a nice dinner all during The Crabbing Hour and didn’t hear a peep. Brendan did not want to touch the sand at all but he liked the little guys from the playset and he really enjoyed watching what Trevor was doing. Trevor and Daddy had fun.

The sandbox will actually live on the front patio where the overflow sand can just be swept into the cracks between the pavers. It will replace the sand that erodes away from there, so it is a win-win. Easy clean up, patio maintenance.