Ever since we got Brendan’s new feeding tube, we have continued to have issues. After the last trip to the hospital, I hoped that they had fixed it but most nights over this last week, we have had issues with the pump detecting a clog and we have had difficulty getting the medicines to go through.
It seemed to only be a problem at night and when he was sitting up in the daytime, we had no problems. Why always trouble at 3am!?
After the issues this morning again, I called the GI doctor and they got us orders to go back AGAIN to the hospital to have the tube checked. They did find a kink again that was worse when he way lying down. So out came the whole button and tube. They put in a new one, the same kind that he had way back in September when they first did the surgery to add the port. (We like going full circle so much!)
This tube is a little larger and a little less soft and flexible so it is not supposed to be able to kink like the other one. The other kind is supposed to be more comfortable but is more prone to bending.

The boys were loafing today while we waited for the order to go ahead and go in.

I had to trust “The Lorax” to keep them occupied so I could make phone calls and get ready.

We got a 1:30PM appointment which was good because it allowed Bill to work the majority of his day (he usually is off at 3PM) and it let me get lunch in Trevor before we left. Brendan and I went in to the hospital and Trevor and Bill stayed in the car and played the whole time.
It was a fairly quick procedure but Brendan was very upset and sweaty when they were done. It is so scary for him!
Even after he fell asleep in the car, his little frown did not go away.

I hoped after lunch that Trevor would sleep in the car because he usually takes his nap at 12:30. NOPE! No nap for Trevor, so he was yawning the whole way home. I made him stay awake until we got there and then put him down (At 3:15!) He slept for 45 minute which was ok because it was so late in the day.

Brendan was much happier to be home!

I tried to take a picture of the new button but he was too busy putting his toes in cups.

The new button is smaller than the last one. I like it better personally, we will see how it lasts.

No more frowns and tears!

The last thing to share tonight is a slap-happy Trevor that loves his dogs! I think Eins is coming to terms with sharing his back yard too!
(cuteness overload alert!)

Sundays tend to be our best day of the week lately. We get more time together as a whole family, we don’t usually have appointments or phone calls, and we get our chores and things all done. I also get some of the best pictures and the blog has the fewest people checking in!

I know today was supposed to be all about green stuff, but Trevor started today with a blue theme. Blueberry yogurt that he was eating all by himself from a blue bowl and blueberry waffles.

I love all this gorgeous weather in the mornings, I am sorry for the northeastern friends and family members that are about to get another 10 inches of snow. We were outside playing with bubbles instead of snow shovels.

We have a bubble wand that makes huge bubbles, it is a drippy mess and the bubbles don’t last but it was cool for a short time.

The bubble wand is like a sword which was more popular than the giant bubbles.
Trevor claims this tile for Trevorlandia!

They make take our freedom, but they will never take away OUR BUBBLLLLES!!!!

This looks like a couple of passed out babies surrounded by their “empties”

But we were just playing with cups and eggs and practicing our stacking skills.

And crashing skills!

And standing skills!

Trevor was rocking the gate back and forth and trying to shake his brother loose!

“Hey Brendan, nobody is looking, I can change your settings!”

“Change it all you want, I disconnected it!”

While Trevor eats dinner, Daddy gets a serious workout

We are so not holiday-ish today, we had Mexican food for dinner. Trevor got to try olives and liked them!

After bath and trach change, Brendan was begging Daddy for more flying. He even does the sign for “more” so how can you say no?

Wheeee!

Brendan gets these huge bursts of energy after Trevor goes to bed. He just wants to play and stand and fly and laugh. You can’t rock him, he won’t sit still. So instead of saying we have to rock Brendan to sleep, we say we have to crazy Brendan to sleep. You just play extra silly for a while and then he will just suddenly yawn big, put his head down and be out cold! (And he usually takes Daddy down with him!)

What a headache I have at the end of the day today! The boys and I were alone from dawn ’til dusk today and they really put me through the ringer.

This morning was awesome. We started out with a treat that we had picked up yesterday. It was really hard to find plastic eggs that didn’t squash or crack or fall open if you just looked at them wrong. They are so cheap and flimsy! Once we found sturdy eggs and buckets, we were ready to go!

They love when there is something new!

Brendan stirred his up and made a lot of noise

Bye, eggs

Trevor enjoyed the bucket

Monkey see – Monkey do

Trevor liked stacking the eggs back in the tube they came in.

We had a ton of cute pictures already and it wasn’t even 9am! Getting cute pictures everyday is easy, picking which few to use for the blog is the hard part!

In honor of cousin Kayla’s 12th birthday today, I tried to get Brendan to say “Happy Birthday, Kayla!”. He did in his own way! He is starting to like to figure out how to make sounds. He was doing such cute noises until I got my phone out to take a video and then he just wanted to attack it instead of talk.

Trevor went down for his nap well today and slept just over an hour. Brendan went crazy and played like a silly while Trevor napped and just as I finally got Brendan down to sleep, Trevor woke up. The day all went downhill from there!

Trevor and I played in my room and watched Brendan on camera so he could sleep. I chased Trevor all around, but Brendan only slept about 40 minutes. He woke up crabby!! Trevor saw that Brendan wanted my attention so then he got crabby too. Then it turned in to a 2-baby crying frenzy for most of the afternoon as they jockeyed for my full attention. Getting the babies through dinner and baths was insane. I took Brendan in to the bathroom to watch Trevor take a bath in the big tub and that was a bad idea. He was terrified and didn’t know where he was. In trying to move him, I ended up dumping a whole bag of stinky formula on the play rug. Then Trevor immediately grabbed the nearest stuffed animals and started playing in the big wet area.
While Brendan was getting his bath, I occupied Trevor with Yo Gabba Gabba. I thought he was sitting quietly in the corner watching the show. Then I noticed he had pulled his diaper off again. No big deal, I had to finish trach ties. When I went to get him, I found that he had made a big poop, taken the diaper off and smeared poop all over the floor.
With the way everything was going, it could have been a hilarious slapstick comedy with me as the butt of the joke. Trevor getting caught up in Brendan’s wires and tubes and yanking the food line out of the pump so that the bag busted, getting more formula everywhere, Brendan peeing on the rug in Trevor’s room while I tried to change his diaper, not one minute of rest for me!
Now that the boys are asleep, I am going to go shower and try to wash away the stress!