Some people said that they missed the post from yesterday because I posted the video post so soon after it. There was great stuff in that post, like Trevor giving his brother a kiss! Scroll back!

This was a crazy Tuesday. PT, OT, and oxygen refill meant there were people coming and going all day. On top of a special delivery of yet another feeding pump because we continue to have trouble with his tube.

Brendan had a great morning, a fabulous PT session, and used his “personal mobility scooter” to get all around the living room.

This is Brendan’s newest ‘naughty face’. He purses his lips and makes little kissy sounds when he is up to something.

Trevor decided that Brendan’s medical supplies needed reorganizing

Our secret plan from yesterday was a roaring success. When I finally got Trevor down for a nap, I went outside on the patio and set it up. When he woke up, he had a fun surprise!!

He just decided to close me in the house.

He ran circles around the place, he was so excited to be outside!! He spent almost 5 hours out there today, in and out of the house (mostly out)

Guess who else spent several hours outside?

The dogs even seemed to like our company and hung out close to the gates!

I made reuben sandwiches for dinner and I gave my little helper a glob of thousand island dressing to play with. He just ate it. (and loved it!) He was super hungry after all that running!

I also let him taste sauerkraut but he was less than impressed. He politely removed it from his mouth and put it back on the tray.

While we were scrambling around trying to get through after dinner routine, I noticed that Trevor had picked up a peepee diaper. Sometimes they don’t make it directly to the trash so I thought he just grabbed one of Brendan’s so I took it away from him and threw it out.
Then I looked again.

It was such a full day! I am so happy that the weather was gorgeous, and the boys both had a blast in their new outdoor area.

Today, March 12th, is the one year anniversary of Brendan’s biggest open heart surgery, the Bidirectional Glenn Shunt and Damus-Kaye-Stansel procedure. At the same time, they did a lung biopsy and a bronchial scope. I am just in complete disbelief that a year has passed already.

On March 12, 2012, we drove to the hospital not even knowing if the surgery was going to happen. It was a heavy debate because he was such a high risk case.

I could write all night about the emotions that well up as I made this video of his path from birth to today. I initially selected almost 400 pictures to use and had to whittle it down to 150 to keep it to a reasonable length. We are so proud of Brendan and what a fighter he is. Even having lived through it, I am amazed by this journey.

(sorry about the ad that pops up in the video, youtube put it there for me because of the song that I chose)

Could I get some eggs with that morning ham?

He is getting better at pulling up to kneel all by himself.

“Gee, Brendan, what do you want to do tonight?”
“The same thing we do every night, Mommy – try to take over the world!” Mwahahahaha

Trevor had a crabby morning, so I devised a plan for a new secret project. It involved running to Sam’s Club. (But not buying Cotton Tails!)

Gramma probably remembers the last time we put these shoes on Trevor. His feet disappeared in them. I think they are size 5! We could see 90 degree weather by the end of this week, he might need some new sandals soon!

Silliness and standing

Brendan is so proud!

Ah, brotherly love

Brendan is just super super thrilled to be able to root in the toy box and pick out what he wants!

I was trying to get Trevor to stand next to the toy box so I could get the same picture as above, only with the boys switched. He kept walking away before I could take the picture. So instead of putting him there, I just told him “Go say hi to Brendan”.
Trevor’s daily bedtime routine includes going over to Daddy and getting a goodnight kiss and then I dip him down so he can give his brother a little head bonk and say good night. Trevor must have thought I said “Say good night to Brendan” because he walked over all on his own and gave him a kiss on the cheek! It was the cutest thing I ever saw!

Brendan-in-the-box – careful, this one bites

Trevor doesn’t know whether to read the book or drive the tractor around the room!

When Brendan finally took a nap this afternoon, he just wouldn’t sleep in bed. He had to be held!

If you can’t beat’em, join’em!!