Our night nurse was sick last night with fever, so she had to stay away from Brendan and the rest of us so Bill and I were up all night half and half like we usually do Saturdays. We are trying to get past all this yuck, we can’t have the cycle start again. Trevor finally seems healthy, my cough is so close to being gone. Other than being tired from being awake so early, Bill is doing OK too.
It was doctor’s appointment day. Getting the stuff together for a big trip to the hospital is a lot of work, but the boys both did a great job. By this afternoon, Brendan seemed to be feeling a bit better and tonight he is showing big signs of improvement.
The doctor was so thrilled to see Brendan and thought he was doing great. Brendan is up to 22lbs, 2.5oz! He just might be passing Trevor up!! She did believe he may have a minor respiratory infection and prescribed a long term, low dose antibiotic to help him fight it off for the next six weeks.
The other big news is that she ordered Brendan a Passy Muir valve. We won’t go in to too much detail yet, but it is a special one way valve that will allow Brendan to make sounds when he is sprinting. When that comes in, we will post all kinds of info!

Brendan casually waiting in the lobby for his appointment. He stopped and picked up his Beads of Courage update beads, we have to update his string.

Brendan read clearly that he was just a VISITOR and that he was not staying at the hospital! He behaved so well for his checkup.

Nom nom!

Just getting checked out. Brendan takes up the whole double whale stroller, Trevor had to come in his own ride! Brendan spent the whole time pulling off his socks.

Trevor says, “Here, pull mine too!”

They love the car ride

I wouldn’t normally put a video like this up, but Brendan just makes it too funny to leave out. He is trying to tell you not to believe a word Trevor says! Trevor makes really funny faces at himself in the mirror too.

I like how the sun was hitting his hair!

We have a fill-in nurse tonight, but she has covered for us once before. Hopefully Brendan will sleep well.

Super healing vibes to Gramma, Great-Grandma, Sherelle and everyone else we know that has had illness, injury and surgeries lately. Enough of hospitals already!!

It kind of feels like we are just hanging in there until we get to go see the doctor tomorrow, Brendan is just not right. He needs a lot of breathing treatments. We can’t wait to see what they want us to do tomorrow.
Trevor and I are slowly getting better and better. Today we made up for lost time the last few weeks and I busted my butt carrying Trevor around while cleaning, putting things away, throwing things away, and organizing.

Brendan worked on his bench sitting skills from PT

It forces him to use his legs and work on new balance techniques.

“Hey, Trevor, get out of my stuff while I am doing my PT!”

Trevor was forced to fold epic amounts of laundry today.

He must have climbed in and out of the baskets 100 times.

The idea was that Trevor would have a little pile of Cheerios on his snack table. He obviously had a different idea.

Our whole family sends love and hugs to Gramma to recover from a rough procedure today. We hope she feels better very quickly. We hope Great-Grandma is on the mend too. Everyone just needs to get well and stay well! We have already had enough sick for this season!

Well today was an improvement. Brendan was pretty restless and yucky all night but this morning he woke up and did a really good job with his PT. He was in a good mood all day even though he needed several breathing treatments and lots of suctioning. Tonight as he is going to sleep for the night, his O2 sats are a couple points above where they have been hanging all week and we are happy to see that bounce back. He is off the steroid now and has a couple more days of rest on his drug weaning so hopefully he can have a couple of nice days.
Trevor slept in, but then had some napping issues today. If he gets good sleep and good naps, he is just the sweetest little angel baby. If he gets tired, he is just super super sensitive emotional baby and he gets very clingy.
He skipped his morning nap and then decided 45 minutes was enough this afternoon. I have to figure out his new routine!!

The boys played so cute together today. Trevor tries to “suction” Brendan’s trach with the pull string from the helicopter toy. Otherwise, they were so nice to each other.

Trevor is going to show Brendan how to juggle!

“Just a second, bro, I am just going to tweak some settings for you while Mommy isn’t looking”

Oops, fell over in to the pillows again!

Trevor did a ton of chomp and clack today, back and forth across the living room. Hopefully that means he is tired and will sleep all night!