Just one more day filled with furious packing remains before departure!

Today was terrible and I am glad it is over. Not only did we have a brand new services coordinator, we had a brand new district nurse. These meetings every 90 days determine our nursing and our therapies. So, to a house they have never been to before, they decide to bring yet another new coordinator in training and have her do all of the paperwork.
After not showing up on time, taking 2hrs to do a meeting that should have taken 45 minutes, and giving me the patronizing, “we know how you feel” line of crap, they cut 8hrs a week away from our nursing hours with a, “please call if you need anything” dismissal.

It gives me such a headache to have these meetings. It is humiliating. I don’t feel like I am entitled to receive services, I am lucky to have them. I just feel desperate for the help and know that it will all be gone sooner that we will be ready.

Brendan had a final checkup with his pulmonologist today and got the “all clear” for travel. On the way to the hospital, Trevor slept for 5 minutes in the car. On the way home, Brendan slept for 5 minutes in the car. That was naps for today!

One wiped out boy!

5:30PM, Trevor hit a wall right before the last bite of PB&J.

UGH. It was too early to put him to bed, too late to allow a nap. I got him up and gave him a long bubble bath and tried to put him to bed early. He still put up an hour long fight to go to bed, but was asleep by 8:20pm.

The stress of the day is still sitting like a lump in my throat and a pit in my stomach. I am really looking forward to vacation and seeing all of our family. The only thing more relaxing than 2 crazy kids is 7 crazy kids!

Spaghetti night! Brendan couldn’t wait until I finished eating because he likes to play with the sauce with the fork.

Only he was licking it!

Yummy!

He was actually licking sauce off of the bottom of the bowl!

He needs a lesson from the spaghetti master

The sleeptime challenges continue with Trevor. He was a terror this morning because he is overtired. I am having a hard time finding ways to help him relax and fall asleep. Once he does, he usually can sleep through the night.

Despite being obviously exhausted, he refused to nap. Then he gets literally punchy and wants to smack and hit everything and everyone in frustration, one of his biggest signs of mega-fatigue.

Tonight’s bedtime should have been easy, but he fought and fought. He told me the ceiling was going to fall on him. (We were recently in a grocery store where part of the ceiling collapsed under heavy rain) He told me that he peed the bed and I needed to change the sheets. (They were clean and dry!) Then he said Brendan barfed on his bed. (not!) He says he needs the light on because his hands are too dark. He finally slapped me one time too many and I walked out. He turned on his lamp and fell asleep like this.

Of course I went in and put him in bed properly.  He will probably really enjoy sleeping in the trailer for the next two weeks where he will share a bed with either me or Bill. Sleep training when we get home will be fun!

2 days until departure!

I do not know what is wrong with this boy’s sleeping habits. He just doesn’t want to be in his bed. Right after this picture, I walked in and moved him to bed and he slept for 2hrs though, he was out cold.

He woke up with a ravenous appetite and kept asking to go in the car. He wanted to go to the “Cheeseburger Store”. He was a bit overtired and cranky and I figured why not just drive around a little. As we got in the car, he changed his mind, he really wanted to go to IKEA for meatballs.

He was not lying about his tummy growling for meatballs. He didn’t share, he finished all five meatballs, a pile of mashed potatoes and gravy and a cup of 50/50 Sprite with lingenberry juice, aka “pop juice”

When we got home, he was in a better mood. He told me, “The sun went down so outside isn’t an oven anymore!” He wanted to dig in the dirt.

Brendan wanted to swing in the misters. Trevor says, “My daddy can turn on mist for us!”

Peek!

Trevor didn’t want to come in, he had important digging to do.

At 9:45PM, he is still getting out of bed, moving around, turning on lights and refusing to go to sleep. I know he is so tired! He doesn’t want me to rock him though.