Brendan had a pretty restless night and a pretty crappy morning. I spent the whole first half of the day holding him and rocking in between suctioning. He was improved over yesterday though, so that was a good thing. It was enough to keep him out of the clinic/hospital.
As long as I kept him comforted in my lap, he was able to sleep. Getting plenty of rest seemed to be what he needed because by this evening, he woke up in a downright silly mood. He was very bright and smiley again and made me feel a lot better. Heart rate is coming down more and more, breathing is getting better. No vomiting, I definitely have a much better day when there is less sour formula smell.

Brendan always takes comfort in petting his little lion buddy

He tells it little secrets

“Go away, I am talking to the lion!”

Trevor got tired of waiting for lunch, so he decided to call for some take out

He got a bucket of tater-tots and proceeded to scatter them on the floor

Mmmm… peppermint tot

They were so good, he had to lick the bucket

Brendan found the whole thing to be silly.

Of course, he was being a couch potato in his bouncy chair looking down at the goings-on

Trevor and his teddy bear

Trevor loves his dogs. Quinn is starting to trust him a little more, especially when he is allowed up on the couch.

What a way to wrap up the week. Brendan started with a miserable morning and we spent all day exchanging phone calls with his doctors. After scaring me by saying that they were considering an overnight admission to the ICU, we agreed that the best thing to do for him was to push his feeding tube back to an “ND” which means it goes deep to the duodenum instead of in to his stomach. This will control his reflux and vomiting and hopefully make him feel better. The down side is that an ND tube can only be placed with xray guidance. An NG (stomach) tube can be put down by us at home. If he pulls this out or gags it up, we have to go back to the hospital again for it to be replaced.

He didn’t mind the car ride, although I hate taking him anywhere in this heat.

We promised him again that he wasn’t staying. Here we are with a fresh taped face and new tube, heading for the exit.

He was so worn out when we got home. Having an epic meltdown when someone tries to put tape on your cheeks really wears you out.

He woke up in a good mood!

If his bright eyes and big smile are any indication of how he will do tomorrow, then we will be thrilled.

He has had rapid breathing and elevated heart rate with his throwing up, and that hasn’t entirely stopped yet, but it is better. It really needs to improve over the next few days for the doctors to be happy again.

Trevor spent the day with Gramma. Good thing she wasn’t on a plane.

Eins has been feeling a lot better too. He is moving around well again. Trevor loves his dogs.

Jungle meerkat Trevor pops out of his hole to see if it is time for dinner.

Our hard weekend continues, poor Brendan is battling for rest and comfort and it pains us not to be able to do more for him. We ended up holding him for much of the day, he is very tired but just hasn’t been able to get good rest.

We were so relieved when he got a few hours of deep sleep this afternoon.

He was able to relax a little while we soaked him in his bathtub.

He tries really hard to be his smiley self.

Trevor must be picking up on Brendan’s condition, he doesn’t want to nap either. He will just lounge around with his crabbie-peers.

Hopefully the doctors will have some insight for us this week and we can keep making progress.